Recent content by Tuppence

Hi welcome to the site, I'm new as well and so far everyone has seemed nice and supportive. I think for most people fibro comes suddenly out of nowhere and it's heartbreaking. It was more a gradual thing for me, I got it as a child so I don't really remember not having symptoms but I have read...

I hope you can get a new appointment soon, it must be so frustrating and also worrying. Maybe you could make the appointment when your mum or fiancé is there so they can say if the time that is offered suits them or not? My mum makes my appointments for me which I'm not happy about as I don't...

How horrible for you Trayne, your mental and physical pain both sound so difficult to deal with. It sounds like you are coping really well but 'coping' doesn't mean it's easy. I can sympathise with you not wanting a therapist, I have seen loads and it wasn't worth the effort. I am seeing a CBT...

I don't have any advice as this is completely outside my experience but I think it's really great how you're standing up to the doctors- you know your body better than they do after all!- and looking for your own way of helping yourself. I hope you can find something that helps.

Susan, I had an ATOS assessment and it went well, I got the decision I wanted. If you have any questions I'll try to answer them. Could you maybe rent a council flat? That's what I'm hoping to do. My experience has been very different from yours, I never had a job till I started writing but...

Is there any way of giving rep points for posts? This post is so helpful, thank you! My laptop puts a red line under words it doesn't recognise which helps and it gives suggestions too. I have no idea why it does that, it just started happening one day! But when a word is perfectly spelled but...

Sometimes I get really bad calf pain but I find it goes away if I wear high heels. I'm not sure how I found that out, I think I just decided if I was going to limp, I might as well do it with nice shoes on. But the shoes seem to hold my feet in just the right position. For those of you who...

I write books but I have no interest in writing an autobiography. I would so much rather write fiction. Not knocking anyone who does write autobiographies, I've read some incredible life stories. But writing for me is like having an adventure and I'm already living the 'adventure' of my life. I...

Thank you for the lovely welcome :) I do like it here so far. I'm relieved you understand that getting a diagnosis has a definite positive side. My best friend doesn't get that at all. She seems to think it's my fault for thinking negatively instead of positively. She doesn't mean it in a nasty...

I find I often have more pain or worse pain when I'm ill. My teeth will ache but my dentist never finds anything wrong. I'm still looking for ways of making it better but there are a few things that help a bit. Massage Resting as much as RL allows Painkillers Being aware of what makes it...

I get thigh pain. Usually I pretty much ignore it as I have worse pain to worry about but I have trouble with walking, especially stairs (which has done wonders for my phobia of lifts) and yesterday I stood up and fell straight back down again. I found that quite funny but it won't be funny if...

Today the worst pain is in my wrist. Usually I would say the worst pain is in my head but it varies. My head, neck, shoulders, back and stomach hurt most of the time and sometimes have a turn at being my worst pain. But sometimes a joint or muscle will suddenly and randomly be agony. What about...

I have often known doctors to get things wrong. I think it might be because they don't know everything about every condition. There are so many conditions after all and I doubt any doctor knows them all so they will sometimes get it wrong because they're human. But I have it and my doctor sees...

I am very lucky because I am a writer. I can work at home, I can stop when I'm tired or in pain, I can go to the bathroom without a whole office of people seeing the way pain makes me walk. If I have a good day at the weekend I can work at the weekend. But I do find writing difficult because...

This thread is really interesting (but also sad...I'm sorry you all suffer so much!). I have hair loss (almost no eyebrows), peeling nails, cold hands and feet, ringing in my ears, dizziness, vertigo. I never considered they might be related to fibro.