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  1. R

    Neck/throat and collarbone area

    I have not but I have had had this off and on for over a year. It has just never lasted this long. ☹️
  2. R

    Neck/throat and collarbone area

    I have a weird feeling in my neck, throat and collarbone area. I can’t really call it pain - more like an ache. It has come and gone but now I am going on a month of non stop. I also wake up a bit stuffed up. I do not have a cold or anything. I have had a chest and neck CT and been to ear...
  3. R

    Alternatives to medication

    I haven’t tried CoQ10. Will read up on it! I have finally been sleeping better last few weeks. Working on 5e exercise as some days are hard. ☹️
  4. R

    Sore throat/neck

    Morning! this is a new one for Me. I have always had aching kind of pain I. The front of my necm but this morning I woke up with what feels a bit like a sore throat and pain into my ears. Anyone else experienced a sore throat feeling?
  5. R

    Just diagnosed

    hi karen! I was just diagnosed recently too! What kind of symptoms do you have?
  6. R

    Just diagnosed

    I agree - it is somewhat comforting reading posts and seeing that others are experiencing the same. I was starting To think I was losing my mind after a few years of so many random symptoms. What kind of symptoms do you have? Last few days have been ok for me but this morning I woke up with a...
  7. R

    Symptoms

    I have been trying to be active and get some exercise in every day. Some Days that is hard. 🙁
  8. R

    Symptoms

    Last 2 days have had neck pain at front of neck and feel like a bit of a sore throat. Anyone else had this?
  9. R

    Symptoms

    Yes it does! I have arm pain often too so it’s always so scary. Have had ecg and chest X-ray and they were fine. It’s always so scary.
  10. R

    Symptoms

    I feel you! Mine was high again this morning but fine now. Do you also get Clammy hands and feet when it’s elevated?
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