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  1. FeelingsFlight

    Canes, wheelchairs, walkers, oh my!

    I understand - I'm 23. People stare at me, sometimes say rude things, most of the time act like I'm not there. My friends have been treated worse, getting all sorts of rude questions, or having people grab them or their aids without asking. I've learned to cultivate a strong aura of 'leave me...
  2. FeelingsFlight

    Canes, wheelchairs, walkers, oh my!

    I don't see a lot of people talking about using mobility aids, and I searched and there's not really any threads about it either! I currently use a cane, but even on good days, going more than half a mile with it will guarantee a flare up, and on bad days I can't go out at all. I'm thinking of...
  3. FeelingsFlight

    Tips for keeping a positive outlook on this disease...

    Having other friends with fibro and other similar issues has made everything so much better. Even when things are rough, we have each other. The people I talk to about my problems truly understand, because they have the same ones. They don't put pressure on me to do things I can't do, and can't...
  4. FeelingsFlight

    Thinking It Might Be Fibromyalgia.

    Fibromyalgia is usually a lifelong syndrome. The onset can vary, and it can be triggered by stress, but it would have probably shown up by now. However, you may want to look up POTS, Postural Orthostatic Tachycardia Syndrome. You even listed tachycardia, so it sounds likely. POTS can start after...
  5. FeelingsFlight

    hand check

    Ok, I must have been out of it when I wrote this because I meant dysgraphia! Sorry! The pain gets worse when stressed, usually starts in one area and then spreads out. I agree that you shouldn't need to explain things perfectly to get the proper help. Almost every doctor I've had has not been...
  6. FeelingsFlight

    Best excercises that we use...

    I've adjusted my idea of exercise to include things like washing dishes, taking a long shower while mostly standing, and walking to the corner store! I just don't have the energy to do regular exercise. I used to love stuff like weight machines, I found the repetition calming and was less...
  7. FeelingsFlight

    When Do You Put Your Foot Down?

    I was pushed by abusive parents and other people my whole life to be a Yes person. It became so natural feeling to me, and the massive guilt at when I had to say no ate away at me. That's changed a lot. I now spend time mostly around other disabled people who understand "no" and "I can't", who...
  8. FeelingsFlight

    hand check

    Well it sounds similar to some of the effects of dyspraxia. I thought for ages I had RA, carpal tunnel, or even maybe Duputryen's Contracture. Did the tests, doesn't seem to be any of those. I have a lot of disorders, including mental disorders. Dyspraxia is a learning disability, in the same...
  9. FeelingsFlight

    Just got a diagnosis!

    Hi, I'm Kai. I only realised I had fibromyalgia maybe 8 or so months ago. I saw two doctors before my current doctor, who gave me my diagnosis in May! I was sooo relieved. I'm young, and most of my life so far has been struggling with being disabled. On the one hand, it's rough that I'm losing...
  10. FeelingsFlight

    Does medical marijuana help?

    As for brain damage - all pain medications, and most substances in general, cause brain damage. In fact, living causes brain deterioration. I've read many, many studies. The side effects of marijuana on most of the body are negligible. The studies that get news time, outside of maybe certain...
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