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I'm so sorry I'm just now seeing this, I've had a lot going on. Well you're not alone, I've talked to many people who get tired of being treated like they are crazy, I hope you don't really give up! A bit about the dermatomyositis; my immune system attacks my muscles and skin. So when I'm in a...

I was going to ask the same thing, are you on any meds? I lose A LOT of hair from stress and meds. Specifically methotrexate and prednisone. Doctors say once you stop taking the meds. the hair loss with subside too. I hope that you get help soon!

It's really sad how the system works. I was denied twice and waiting for a hearing now. I'm hoping my doctor helps make a good case for me, he tells me that I can't work and I know that I can't work, but what he writes for the judge could be a whole different story, I'm wondering if he's the...

Thanks for taking the time to welcome me, I appreciate it and am glad to be here. I agree that we have a lot of similar symptoms too. Have a great week!

Ditto here! Gardening, pulling those weeds, even though it kills me for days (weeks) after! I love the way the garden looks after but hate the way I feel. Don't even get me started on the painting I decided to do inside of the house :-/ Wishing you all well!

I like to paint. I paint on canvas and wine glass and sell them (very, very, very small business). I had to take a break because my hands started to shake pretty bad, but I'm back to it again. It's nice having a hobby.

Hello everyone! I'm Nichole I haven't been diagnosed with fibromyalgia. I believe I may have it as I have been diagnosed with a rare autoimmune muscle disease called dermatomyositis and FM is something that likes to tag along, same with lupus and other autoimmune diseases. I do have chronic...

Hey everyone, my doctor prescribed tramadol, it works for some people and it's non-narcotic, but it really doesn't touch my pain. I haven't been diagnosed fibro, I have chronic pain related to an autoimmune muscle disease amongst other things.

Hi! It's really free, and once you click purchase it should give you the option to send to your online kindle :-)

I know you mentioned having muscle and nerve testing, but did it include a muscle biopsy? I ask because I had similar symptoms and it took the biopsy to find my diagnosis. (Dermatomyositis) An autoimmune muscle disease...