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  1. L

    Having a flare...*whine*

    I huuurrrttttt, and I am stiff and my knees are wobbly and my balance sucks and my hands are clumsy and I feel crazy and I hate to have to keep asking for help, but my husband just FORGETS that I feel like shit and can't just get up and get a glass of water or a snack. And I have these damn...
  2. L

    Gaining Weight?

    Meds making you gain weight is THE WORST. Especially because the weight gain causes other problems or exacerbates the ones you've already got. I'm so sorry...no advice, but plenty of aggravation on your behalf.
  3. L

    What food makes you worse?

    I am in the process of finding this out! I was recently diagnosed with microscopic colitis, and went on a very restricted diet to heal my innards, while waiting for my testing for food sensitivities to be completed. After 2.5 weeks I feel better than I have in YEARS - the pain (body pain AND...
  4. L

    Sjogren's Syndrome

    I have Sjogren's syndrome as well. OMG the eye dryness - a few times my eyes got all inflamed and I was blind....scariest thing in the world to me. I take Restasis right now with good results. I was diagnosed with Lymphocytic Colitis (after 27 years of diarrhea!) a few weeks ago. Apparently...
  5. L

    Doxycycline helping stiffness, but still having flare

    It has anti-inflammatory properties and also is used for dry eyes, which I also have as part of Sjogren's syndrome. It did used to be used regularly for inflammatory arthritis. It's not *the best* for longterm use, but it's pretty decent for mid-term use under certain circumstance. It's...
  6. L

    Doxycycline helping stiffness, but still having flare

    Well well, as it turns out, the doxycycline started giving me esophagitis this week, and thanks to you, Karmakitten, I was primed to wonder if it was the doxy, rather than assume it was something else. I take the pills at night and go to bed right after. They are sticky, and apparently that...
  7. L

    Doxycycline helping stiffness, but still having flare

    Still doing great. Occasional soreness - much less than before, and still no stiffness unless I miss a couple of doses in a row (overnight with girl scouts, forgot to bring it). I am walking 3 miles (sometimes hills) 4-5 times a week. OMG, that alone is stupendous! I haven't been able to...
  8. L

    Doxycycline helping stiffness, but still having flare

    Oops, posted in wrong place...maybe this is right one I had surgery on my tear duct a few weeks ago and am on 2 mos of doxycycline because it thins the mucus or somesuch. I realized about a week in that I was feeling GREAT - getting in and out of bed, car, couch with no stiffness or pain...
  9. L

    Doxycycline helping stiffness, but still having flare

    I had surgery on my tear duct a few weeks ago and am on 2 mos of doxycycline because it thins the mucus or somesuch. I realized about a week in that I was feeling GREAT - getting in and out of bed, car, couch with no stiffness or pain whatsoever. I started walking...OMG I could go on walks and...
  10. L

    HELP! 1st Rheumo Appt - What to do?

    That's frustrating! One of the things that drove me to the rheum was that I used to do triathlons, ran daily...swam a lot, did yoga several times a week, and now I can't excercise *at all* - even a short walk - without a ridiculous amount of pain after. For a long time I thought I just had...
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