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sinisterporpoise is right try to distract your self and then go make your mind up you will not quit until you get a diagnosis. That's what I did and then all of a sudden bam! I got a diagnosis! (Lupus) oh but it only took almost 10 years..but part of that was my fault-I would get discouraged and...

And WHY aren't there more support groups!? I looked in my entire HUGE metropolitan area there is ONE support group the second Tuesday of the month and Im not even sure if its still active. I think I will try and start one! Hang in there ames1993! I know how your feel! You need a pick me up! New...

You should start a diary of your symptoms. Mouth sores is a symptom of lupus (you probably don't have it) but, I think it is a good thing to write it down because if you're like me and it goes away you will forget about it in a few months. Especially since some of us have a lot of weird...

Mine is every 3 months but we can email her. I signed up for the email thing but I lost the paperwork. I can't keep track of all this stuff.

Another thing you may want to think about eff fibro is either a state desk job (I did that until my symptoms got too bad) and/or the hospitals float pool. You could be in several float pools and work when you want but the trouble is still sometimes you start feeling horrible right before work or...

Try having hepatitis c Angelstar. People automatically think you are a drug addict loser! Talk about stereotyping. If you have HIV you are hailed as a hero but hepatitis c? Not so much. Fibromyalgia? They automatically think you are faking. They need to come up with a test for it and I would...

Im an RN too Eff fibro. I would be up on the floor and just start sweating and get hot and feel like I was going to pass out. My mind couldn't even think straight. I thought I was going crazy because I just wanted to WORK and feel normal but I was in pain from some unknown cause. The worst part...

Yeah you are probably right Krista. I was already in my 50's when I applied.

Lana~ They have these volunteer people and they will support you. I took a guy with me and he wound up not saying a lot but I felt like the judge respected the fact that he was there (you know how guys are). Well search "volunteer support for social security" of something like that and call...

Lana You have a rheumatologist right? Two positive ANA tests seems like lupus. I haven't had a chance to ask the doctor a bunch of questions since my diagnosis but the neurologist and the rheumatologist both called me and said according to the blood work I have Lupus but I think ANA is the main...