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Oh yeah I definitely feel they dont take me seriously sometimes - usually when I am at my worst. I swear they think I could do things if I wanted but just want to slack off.

Are there no support organizations where you are that can help provide legal advice and stuff to help you with your fight against the insurance people? In the UK we have the CAB and a couple of other groups which will help a person if an organization is trying to wriggle out of their...

I think my partner "gets it" for a while then something happens that leaves me feeling like he (and other members of my family) think that I am just faking it for the benefits and they are simply going along with it because it suits them. My dream at the moment is to live alone - then I dont...

I have recently developed bursitis in my knee - it was distinct from my usual fibro pain and the doctors examination confirmed it. I treated it separately from the fibro and has resolved.

I find I can block pain for quiet a considerable time but it never ends well. I can block so well I do not notice my pain levels going up but the more the pain increases the more energy it takes to block it and inevitably results in me have a massive screaming emotional breakdown on my family...

Like you I am much better over summer. I actually went camping for 3 nights last week - after a quiet week before and with nothing planned now for a couple of weeks to rest and recover. I know with me it ties into seasonal affective disorder which I had long before fibro became a problem - I...

Oh god I know that second guessing so well - the little voice in my head whispering "see you can do it today are you sure you weren't just faking yesterday?" along with the "maybe it is just psychological and I should just pull myself together" thoughts. It took me 3 or 4 years to stop trying...

I am long term planning to move to the beach - I have just had 3 nights down at the coast which makes me want to live there even more. For me its the waves against the shore - even or especially when its stormy. I can sit and watch the waves forever and it just gives me a feeling of incredible...

Ah the fibro and depression thing. Ask someone if they think being in pain 24/7 with constant exhaustion might make them feel depressed and they will agree of course it would. Yet time after time medical professionals will make out that if you exhibit the signs of depression that must mean...

Not wanting to second guess doctors or anything but if I hear about joints popping out and being unstable it always makes me think Ehlers-Danlos syndrome or other hyper-mobility causes. I know Ehlers-Danlos can go undiagnosed - and although getting a diagnosis is not good in that it can be...