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  1. M

    Burning Pain..desperation

    Sorry things are so bad for you now. I have the bladder thing. It got to the point where my urethra was burning and it felt like I had to pee constantly. I used to sit on a heating pad. When I started on gabapentin it almost disappeared, at least the worst of the sensations did. If I stop the...
  2. M

    fibromyalgia??

    I don't know about types of insurance in the UK but in the US you can get long term care insurance in case you need extra care when elderly. After I got my diagnosis of fibromyalgia I was turned down for this insurance. I have applied a number of times since and always been turned down due my FM...
  3. M

    Do You Move at Night?

    I usually don't have insomnia but I often awake at night from pain. Specifically, when I move it hurts in a very major way. From what I have noticed in myself, I remain in the same position for most of the night. I sleep with my iPhone and listen to it to fall asleep. It's set to turn off after...
  4. M

    How do I properly get tested/diagnosed with fibromyalgia?

    "How do I properly get tested/diagnosed with fibromyalgia?" I'd think this about this for a while. Do you really want a diagnosis of FM following you around for the rest of your life? I have never found it was beneficial to have a FM diagnosis. I do know it has prevented me from getting certain...
  5. M

    ice bucket challenge

    "Should someone with fibromyalgia and chronic pain do the ice buck challenge?" Not too sure what you are asking here. Just reading about that challenge caused pain in my arms and legs. I guess it depends on what your goal is in dumping the ice water on yourself. You should know if cold temps...
  6. M

    Any help for the new girl....

    Three pieces of advice. If I could go back and do one thing at the start of all this, I would avoid the formal diagnosis of FM. It has prevented me from getting certain kinds of insurance and paying more for others. I think a better diagnosis would be chronic pain. Take it one symptom at a...
  7. M

    For Those Unable to Work: How Do You Spend Your Time?

    I took up writing. I went back to school to get a masters in a field to start a private practice but once this hit I barely finished the program. So I got lucky and took up writing in my field. I have a home office but still it can be hard to work.
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