I think that doctors need to be asked the though questions, it's not just prescribe and walk away, there are serious consequences on those prescriptions.
It's breaking my heart to read your posts... How to keep positive, trying to do something that makes you feel good, investigating the disease, trying to see what doctors can't, it has to be a way to improve.
Feeling tired is something awful, it's like the energy is leaving us and we don't know why, I just wish there could be identified a cause that we could attack.