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Its been a while since ive been on here, its been an exceedingly rough 9months, from finding a medication that made a world of difference to the pain from ankylosing spondilitis(as is very common when you have one chronic condition, you often have multiple, my lucky dip draw is Fibromyalgia...

I'd say this will be a controversial topic but I'm curious 😊 As people with Fibromyalgia I know the range and severity of the pain we experience, and the types of pain we experience, are too many to count or list. My question is this: do you have a preference in the type or severity of pain...

I know this has been discussed but the threads are quite old. So December 21/January 22 i started on amitriptiline which felt like a miracle in a bottle i had my first pain free days in i couldnt even remember how long and this medication was effective till flare up that started with a throat...

I have been sick for 7 years in a months time, i have been referred more times than i can count to various departments at the hospital, rheumatology specifically atleast 4 times, i was seen once from those four or more referrals and it was a joke, a cursory examination and being told yip youve...

Hey Team, just wanting some thoughts and opinions. Before i make any changes to medications this is always discussed with my doctor and we work through the process together. More looking as to whether anyone has experienced or tried this. So when i started the amitriptiline in december 2021...

So i got 'sick' at the end of June, thought it was tonsillitis but it was actually an outbreak of Ulcers in my throat mainly but some in my mouth. At that time we took bloods and my crp was 13.7, they were redone the next day and they were down to 8.6. On sunday (13/11/22) i started getting a...

So flare up started last week of junee, still going, this week has just gone into over drive and now needing to use crutches as my left leg/side from the bottom of my ribs down is just agony, weight bearing is extremely painful and the leg gives out under me randomly, not the first time hence i...

Does anyone else have issues with like say in the morning im hungry, so im making my breakfast plus know i should eat because not eating isnt good. This morning, was really hungry, made my breakfast, sat down at the table to eat it and my appetite evaporated into thin air and the thought of...

Hi all, i am new zealand based and am now in need of going through the process for trying to get some home aids, mainly a shower chair and adjustable chair stool for the kitchen when cooking and standing for too long isnt an option some days. If you could share your experiences with the new...

Ok so i am 6.5years in to my chronic illness/fibromyalgia/CFS Journey and for the most part i have had a partner throughout this time, who can help me get out of bed when my body says NO!!! or can rub magnesium cream on my back neck shoulders, SI joints. My partner and i have separated among the...