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I apologize if I came off as light-hearted, or unconcerned about what is going on. Trust me, the constant state of anxiety is not helping my pain levels and I can only watch in horror at what is happening on the news. My twin has COPD, is over 60, still smokes cigarettes, is not in great health...

Just watching how this Corona Virus has turned the world upside down so quickly, but otherwise it’s just an average day for me.

It sure is hard to describe some of this stuff to the Doctors. But we know that we aren’t crazy. This is actually happening to us and at least here, on this forum, we will get a sympathetic ear (or should I say eye?) and maybe even some helpful advice, which is sometimes more than we get from...

For me I found that one huge culprit of brain fog was medication side-effects, which is something I think does not get enough attention. The recommended dose of one of the main drugs usually prescribed for Fibro gave me such brain fog I was lucky if I found my coffee in the morning. It was bad...

Does anyone else experience random facial, well... I call it cramping, although sometimes it almost borders on pain. It mainly seems to flare around my mouth and into my cheeks, turning them beet red. It’s not a hot flash. I went through that nonsense ten years ago, so I know the difference. If...

I understand what you are saying about the exaggeration of sensations (or lack thereof) and the mysterious bruises, and I agree that a positive attitude is key to living with this illness. I was also on heavy opiate use for 15 years which probably masked the onset of the symptoms of...

And no one likes to think they are nuts! Doesn’t that just drive you crazy?! :p :LOL:

I’m sad for anyone who experiences pain like this, or any nasty pain at all, but somehow it helps to know that maybe I’m not alone. Thanks for the responses. It helps. :-)

I eased myself onto your forum this week because I wanted some “Community.“ I’m probably not your average diagnosee— in that I was 60 before the verdict was handed down. I also live in the North East, so I know what it is to have stage 3 Lymes Disease, which is also not fun, but is curable with...

My Neuro told me this was due to a small nerve fiber issue, but the sensation is fairly horrific. Does anyone else ever experience the sensation (I get it mostly in my legs and feet,) of being both dipped in a vat of boiling oil and of freezing to death? I know it makes no sense, and my Drs...