Search results for query: *

  • Users: JayCS
  • Content: Threads
  • Order by date
  1. J

    Is fibromyalgia a diagnosis of / by exclusion?

    The opinion that fibromyalgia is still a diagnosis of or by exclusion comes up fairly often, altho it was like the tender points test debunked by the ACR criteria in 2010. It is a diagnosis of exclusion, inclusion and checking the amount of pain and 6 other symptoms. It's true that many...
  2. J

    My Trial of Low Dose Naltrexone LD N for my fibro, "ME/CFS", MCAS and post vac Long Covid

    Instead of bits'n'bobs in passing, a separate diary-like thread, like @JamieMarc's guaifenesin one. (Meandering off here is no problem for me.) LD N has surprised me by being the one thing that's made the most sustainable improvement to my conditions. After and besides 100s of others that I...
  3. J

    Fibromyalgia Conferences/Summits/Webinars etc.

    Up to now I've kept low profile with all the webinars and summits I've been watching and taking notes the past few years, and didn't get any questions about my mentions of them either. Now I've thought praps after all it makes sense to share what's going on, even if no one will take part. For...
  4. J

    How to Understand Someone With Chronic Pain

    I just came across a wikihow page with above title, shared and recommended by some people with fibro. It may be a slightly more generalized take, but that once again shows that we’re far from alone with our specific condition fibro, and essentially it’s got a lot of basics put in a good simple...
  5. J

    Website problems since site move last week...

    Probably not just me: I can post same as before, but can't "find" anything via "search" from before the site move last week and E.g. a search for "test" or "acceptance" comes up with 3 or 4 posts from the past days. I also can't message anyone, altho I can tag them in posts (see below). (Error...
  6. J

    Learning to move better...?

    This is praps gonna be a bit bloggy. I think I'm trying to show how I'm not giving up, altho things are getting worse at the moment. And also asking if anyone has any ideas on this how I can move even better or otherwise make my life easier, whilst still ... good-humoured, accepting, adapting...
  7. J

    Books on Fibromyalgia

    Results of collecting books recommended on the forums and then looking at reviews: The one most highly recommended by many is: Starlanyl, Devin (& Mary Ellen Copeland) “Fibromyalgia and Chronic Myofascial Pain: A Survival Manual (2nd Edition)” ("Fibro Bible") (has fibro himself) The most...
  8. J

    How to grieve, self-motivate, track symptoms, hunt triggers, decide & follow thru on treatments

    See also the "spoilered"/structured version ... shall I delete one of these? Lists of causes/triggers, symptoms & treatments can provide us a bit of orientation. They can help us even if we don’t change what we do, by changing our mindsets, e.g. “acceptance”. But we can normally only improve...
  9. J

    FM/a test - bogus(?)

    This is a new short article on medpagetoday.com yesterday, based on a very long and informative STAT investigation article from last week (2021/10/20). My comments (sorry, lengthy again...) below... Bogus Fibromyalgia Test? (full short medpagetoday-article)" A blood test for fibromyalgia is...
  10. J

    Resources on this site

    Researching docs and support groups in Leeds just now duckduckgo pointed me to... this site! (No I don't ever use the nosy search engines.) Just goes to show that we don't even know all the great resources there are here. In the "parlour", if this is the living room and the kitchen? (OK: I...
Back
Top