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I have not but I have had had this off and on for over a year. It has just never lasted this long. ☹️

I have a weird feeling in my neck, throat and collarbone area. I can’t really call it pain - more like an ache. It has come and gone but now I am going on a month of non stop. I also wake up a bit stuffed up. I do not have a cold or anything. I have had a chest and neck CT and been to ear...

I haven’t tried CoQ10. Will read up on it! I have finally been sleeping better last few weeks. Working on 5e exercise as some days are hard. ☹️

Morning! this is a new one for Me. I have always had aching kind of pain I. The front of my necm but this morning I woke up with what feels a bit like a sore throat and pain into my ears. Anyone else experienced a sore throat feeling?

hi karen! I was just diagnosed recently too! What kind of symptoms do you have?

I agree - it is somewhat comforting reading posts and seeing that others are experiencing the same. I was starting To think I was losing my mind after a few years of so many random symptoms. What kind of symptoms do you have? Last few days have been ok for me but this morning I woke up with a...

I have been trying to be active and get some exercise in every day. Some Days that is hard. 🙁

Last 2 days have had neck pain at front of neck and feel like a bit of a sore throat. Anyone else had this?

Yes it does! I have arm pain often too so it’s always so scary. Have had ecg and chest X-ray and they were fine. It’s always so scary.

I feel you! Mine was high again this morning but fine now. Do you also get Clammy hands and feet when it’s elevated?