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  1. U

    fatigue flare up

    I have not been diagnosed with chronic fatigue but I get into these weeks of fatigue where I can barely do anything. If I am moving like when shopping I am awake enough but as soon as I sit down, I fall asleep during what I am doing. Does anyone else have flare ups of fatigue even if pain...
  2. U

    How common is eye pain and blurry vision in fibromyalgia? What are your experiences?

    Eye doctor insists that they can't make the glasses prescription stronger, and the blurriness is from dry eyes. Regular doctor says it is from fibromyalgia. Eyes hurt and I am always using the one eye drop that gives any relief and eye gel throughout the day. But they make things even...
  3. U

    Increased shakiness and asterixis.

    I am much more shaky and it is hard to text ot type or text hold light things. Heavy things are easier to hold. Fine motor skill is worse. I don’t know if this is part of or separate from asterixis. I will have to check with my doctor but would like to know if anyone else has asterixis. The...
  4. U

    New medicine (for me) and refusing to continue what the doctor said.

    He recently prescribed Cyclobenzaprine 5mg. I have no idea how anyone can tolerate that. I slept and never did feel awake. I break the pills in half and even at 2.5 mg I sleep 12 hours a night just to function when awake. I already take Lyrica and some other medicines, including my anti...
  5. U

    Fibromyalgia awareness pins

    I see it most of the time listed as purple. But not always. Does fibromyalgia have its own color or is it the same as chronic pain? I have epilepsy too. Does one pin represent both? One color represent both? Fibromyalgia awareness month is May, isn't it? The second quesstion: What do all...
  6. U

    skin hot to the touch

    This isn't a new a new symptom, just one that no one has explained to me. Does anyone else have it where there upper body skin is hot to the touch. It doesn't always hurt although it is worse during a flare up. It is just that if you put your hand on it, it feels hot. Neck and upper body the...
  7. U

    medicine experiences

    I tried amitriptyline several years ago and can't remember why I stopped. I am trying again because my fibromyalgia symptoms are getting worse. Harder to talk, more fibro fog, legs feel like jelly, migraines more frequent, fatigue worse, etc. I read about all your experiences with medicines...
  8. U

    Anyone here diagnosed by their family doctor?

    It was several years ago that I was diagnosed by my family doctor. I should say previous doctor because I left him for other reasons. But then went to an Internal Medicine doctor who agreed I have it and when she moved I went to another Internal Medicine doctor who agreed. I also have a...
  9. U

    So grateful for medicines and supplements/vitamins and What are your worst types of pain?

    I know they don't take away all the pain. And I know that I will probably always wish someone could explain why some days I can do a lot and be much better than other days where I do much less, yet still have pain. For me the nerve pain that feels like someone is sticking a lot of hot pins...
  10. U

    What is a reaction score?

    I can't find where you ask questions about this forum. But when you go over someone's name, it says 'reaction score'. How do ou give trophies? Is there a FAQ for things like this somewhere?
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