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Hello! I'm north of KC. If you don't end up finding one in the KC area, I go to a good rheumatologist in St. Joseph about 30 miles from that area. Dr. Bronson is a kind & thorough doctor. He spent an hour with me the 1st time I saw him and explained everything in detail and answered all of our...

Yep that sounds about right! 😂 We definitely have to pace ourselves. Too much in any given day is a no-no. I went to the gym yesterday (no laying out) and I'm fine. But the 2 on the same day was not a good combo, apparently. 🤷 I agree it's all about balance... the limitations do stink, but we...

It was warm that day & I came in when it got too warm. I've had the same reaction going golfing with my husband (I don't golf, I drive the cart) and going to flea markets. Not hot days, just sunny & beautiful. Just being out IN the sun- not even heat- gives me fatigue.

I go to Planet Fitness & do their 30-min circuit & walk the treadmill. I also do chair yoga at home and an arm weight video from Youtube. Occasionally, I do Leslie Sansone Walk-at-Home videos. Also on Youtube, but everything is these days. 😉 How about you?

I completely agree to not sit out in sun on the days I workout. I think that was a mistake! Eek. Thanks so much for your input!! Hope you're having a feel good day!!

Just feeling SO. RUN.DOWN. Went to the gym yesterday & barely made it through a lighter workout. Sat in the sun before that- and I really think the sun *absolutely* zapped me! Still so so fatigued today, even after good sleep. I feel like I've been hit by a truck. Does anyone else get zapped by...

Beautifully said!! 💞

Thanks for your words! Just knowing others "get it" is so huge! I have an amazing husband who holds me & lets me cry- and is really comforting! I'm blessed in that regard for sure. He often tells me - "Sit down! I don't want you overdoing it!" 😍 He's a good man!! My wish is that everyone could...

When you guys are feeling real bad do any of you get real emotional? Last night I was hurting so bad after a busy day -AND- I worked out at Planet Fitness. I couldn't stop crying. I'm always sure to stretch out real good afterwards & drink a lot of water. I paced myself yesterday as my hubby & I...

Yes, having a flare as well. I recently realized the warmer months are my flare times. A lot of sun is a trigger so that kinda stinks. Still learning to navigate my way through this- just diagnosed last summer.