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  1. sleepytrex

    Query Fibromyalgia

    Ah okay. The rheumatologist I saw who gave me my diagnosis informed me that this was the definitive test now that everything else had been ruled out, which is why he had asked for a face to face appointment with me. Might be different in the UK.
  2. sleepytrex

    Graduated Exercise Therapy and CBT removed from NICE guidelines (draft)

    Excellent news in my opinion. I was encouraged to increase my physical output each week by the physio at my CFS/ME clinic, even if I was experiencing adverse effects. This led to one of the biggest crashes I have had since falling ill with ME/fibro. They have also removed CBT as a form of...
  3. sleepytrex

    Query Fibromyalgia

    Definitely strikes a chord. I think one of the definitive forms of diagnosis is the tender points/sensitivity tests, but as @sunkacola said it's a diagnosis of exclusion. I was first tested for arthritis, which took the form of bloods (I ended up having 3 blood tests in total for this, not sure...
  4. sleepytrex

    ME/CFS sufferer recently diagnosed with Fibro - new to forum, wanted to say hello

    All very true, and all very wise statements. I'm still working on the thick skin; I think that even though it's random comments on the internet it still hurts, because I feel as though fellow sufferers should show a greater understanding. I can excuse ignorant comments from the uninformed, but...
  5. sleepytrex

    ME/CFS sufferer recently diagnosed with Fibro - new to forum, wanted to say hello

    Haha very true! I'm fitter than I realised :D
  6. sleepytrex

    ME/CFS sufferer recently diagnosed with Fibro - new to forum, wanted to say hello

    Really appreciate the reply and the kind words. My post came off a little more confrontational than I intended and I couldn't find a way to edit it. What I was trying to say is that I've been in forums and groups before where people were very judgmental of each other. For example, one person...
  7. sleepytrex

    ME/CFS sufferer recently diagnosed with Fibro - new to forum, wanted to say hello

    Hey - was diagnosed with ME in 2016, just had a diagnosis of fibromyalgia as well. At the time of my ME diagnosis I had never heard of fibromyalgia, and was focussing all my efforts on trying to keep my career, plus we had a baby on the way, so I never really stopped to consider why I was in so...
  8. sleepytrex

    Good days and bad

    Hey, really sorry to hear that but I completely understand. Those little windows of feeling a little better make the subsequent crashes all the more hard. I think one of the 'mistakes' I make is that when I'm having a better day I try and cram in everything that I've been planning to do, which...
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