dad

oh grr i just typed this long vent and the system kicked me out without posting it so I have to start all over but what's the point. I am having a rotten day after a very physically and emotionally stressful 3 days. oh well maybe i can word it better this time. Saturday my husband and I...

I'm trying to find anything that my help my dad with his terrible fatigue he is having lately. We mentioned the drug Mestinon to his ALS neurologist and he said No, that it wouldn't help him at all. Do any of you taking any vitamins? I thought that might help a little. Any suggestions would be...

I have been going to school since last september to re-educate myself for a better job. I go to class 5.5 hours a day which works out great so I cna be there to relieve my mom who is my dad's normal caregiver. I am soon finnishing school and I won't be as available for them in the coming months...

Hi ALL! Well, here is the story. My daughter was diagnosed with narcolepsy 2 weeks ago. Her doctor gave her 150mg tablet samples of NUVIGIL. She took one, and it was like she had just woken up from a 2 year sleep. Coincidentally, my dad went to his ALS specialist in Seattle who gave him...

I think what you are talking about is a TENS unit? You put pads on your skin/muscles and it shocks them and flexes them right? I have one. I don't have ALS, (its my dad) I use it for chronic back pain and fibromyalgia. If my muscles feel really tight and they are hurting I will use them to...

well, I am not sure where to begin. I have had some minor things on and off for along time. Quickly-epstien barr virus at 20. That lasted for a year or so, there was no twitching, just tired and achey. Then 8 yrs ago mis-diagnoised with MS. I was having tingling and numbness, had MRI, came back...