no diagnosis

  1. C

    no diagnosis

    I have no idea what is wrong with me. I have pain in my upper legs, hips, back, arms, shoulders, neck, and head. Sometimes I also have pain in my face and teeth. Sometimes my arms and legs feel weak and shaky. Sometimes I can go for a period with no pain. Sometimes I have pain in only one spot...
  2. J

    Tingling hands feet even scalp

    Help! I have had tingling almost all of my body for several years, it never gies away but seems worse with stress. I also have pain throughout my body. I have had numerous blood tests. Been to chiropractors, neurologists, no diagnosis. I aolso have brain fog . Am tired all the time and hurt...
  3. D

    Epidural or Spinal Block?

    Hello, I am new here, but also have a rare disease called SYRINGOHYDROMYALGIA. It means I have a cavity in my spinal cord. It is incurable. Before any tests were done doctors were diagnosing me with CF and Fibro. It took another several years and many tests and still no diagnosis. I was out with...
  4. K

    Starting to think I was misdiagnosed.... :/

    I was diagnosed with fibromyalgia after 2 horrible car accidents... Personally, I have never felt like this was my actual or full diagnosis... My Dr's have, over the past several months started looking in to Crps aka complex regional pain syndrome which used to be called RSD reflex sympathetic...
  5. K

    Almost 10 Years Of Chronic Pain

    I am 28 years old and have had chronic pain for almost 10 years. It started with severe back pain right under the bottom of my right shoulder blade. Doctor after doctor just tell me they don't know what to tell me. I eventually just gave up on them. I've been to MD's, DO's, Chirpractors, Massage...
  6. C

    newbie- advice please

    Hi! I too new to this support group. So, here is my story. I was finally diagnosed this week after a year of seeing just about every specialist there is. For a long time I blamed tension and anxiety for my tense muscles and pain throughout my body. I also have Irritable Bowel Syndrome brought...
  7. A

    Air Force F/27 Recently Diagnosed

    Hello fellow sufferers of Fibro... I was finally diagnosed with fibromyalgia last week, and I am just looking for some direction. My pain began last October. It all started in my right pinky finger and spread from there. I have now been dealing with chronic widespread pain for about 9 months. I...
  8. G

    NO diagnosis...worsening conditions.

    Hi everyone- Some of you may remember I posted here a few months ago, indicating problems with hand dexterity, face muscles feeling week and strange nerve like pain. About 8 months later, 2 limbs EMGs, head MRI, CT scan of chest, battery of blood work, (all negative) I ended up at MGH in...
  9. G

    Fibromyalgia versus ALS

    In response to a post: Your newest batch of symptoms sound more like fibromyalgia than anything else. ALS isn't going to cause pain in early stages. LOSS OF USE is what usually sends those with ALS to the doctor. They suddenly can't do something--for me, it was I couldn't push the buttons to...
  10. G

    Worried about undiagnosed ALS with Fibromyalgia

    I am 46 years old with symptoms for 8 months. Started with a feeling of stiff ankles and feet on waking which would subside quickly. Then I developed what I called "keyboard and txting dyslexia" where I would have trouble typing and texting and wrists and fingers didn't work. Initially presented...
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