A list of MANY fibro symptoms; I found this very, very helpful :) And, I'm 30+ yrs diagnosed

[fimi]

The last time I went (years ago) he said my teeth falling out was due my fibro accelerating 'jaw bone shrinkage'

That sounds awful for you @Rainbow. I didn't even realise fibro could do this?! Hope you're not in any pain now!

 

[JayCS]

I didn't even realise fibro could do this?!

I'm also very surprised, seeing as I've read a lot about this due to tooth problems increasing since fibro.
I know the dry mouth that comes for many with fibro can cause tooth, but not bone problems.
And my dentist understand that concentrating on keeping my teeth clean is a chore as it's one of 1000 more immediate problems.
Calcium and magnesium seem to be some of the few things we can do against jaw/bone shrinkage, looked that up for my wife.

 

[Auriel]

Is an ocular migraine when your vision turns into a rainbow and puddles? or temple migraine close to the eye? I get those types (not often though) the 1st one was a bit scary cos I couldn’t see properly for a bit!

 

[Auriel]

I didn’t think fibro could that either fimi this is very scary (I know bones shrink and weaken as we get older but I didn’t know it could accelerate?) could it be a separate issue? this is scary if this is everything that’s gonna happen to us I think I wanna sleep and not wake up! 🕳

 

[fimi]

I hope it's not a common symptom @Auriel...I'm quite fond of my teeth!

 

[Auriel]

same fimi and the whole list scared me I hope we don’t get everything on it, I’m gonna sleep a bit (feel a bit rough) I’ll speak very soon

 

[fimi]

sleep well Auriel...

 

[Rainbow]

I stopped reading the list a while back, as having ticked all the boxes that applied to me, I then found I was prone to suspecting I had the handful that were left & plenty that weren't mentioned on the list at all, so the overall effect on me was detrimental to my
'This is not terminal, it's just a nuisance I can rise to the challenge of,' Can Do attitude.

Ok, so I often fall short or fail in whatever it is I'm attempting to achieve but stopping even trying is to leave the path of wisdom imo humble opinion.

I have a neighbour who swears blind she overcame Fibro by refusing to be labelled with it & continuing to do what she had always done,
which included 'walking the hills', exercising etc & I think there is a kernel of truth in that stubbornly refusing to give-in attitude
but in my darker days I'm convinced she was just misdiagnosed.

Having said all that, Vodka helps, even if the hangover is an absolute nightmare
& I must say I had no symptoms at all when I indulged in recreational 'natural' substances.
In fact, the Specialist said I'd probably had Fibro a decade or more & not even noticed till I stopped using it.

Instead, now I'm keeping the Pharma Companies & their Shareholders very rich & happy
but I'm told the buy-over-the-counter versions have a positive effect for many.

Oh the irony!

 

[sunkacola]

I have a neighbour who swears blind she overcame Fibro by refusing to be labelled with it & continuing to do what she had always done,
which included 'walking the hills', exercising etc & I think there is a kernel of truth in that stubbornly refusing to give-in attitude
but in my darker days I'm convinced she was just misdiagnosed.

I am convinced that you are right about this, Rainbow!

I just ignore people who say they have cured or completely overcome fibro because most if not all of them never had fibro. Heck if it could be overcome by staying active, and hiking in the mountains would make it go way I would have been cured many years ago!

Not to belittle her one bit....she had some problem and it went away and she stayed active and all that is good.

While I believe strongly in the practice of Acceptance Of What Is, I also am a firm believer in doing whatever one can to make an undesirable situation better. Those who give up are denying themselves the opportunities that exist to find answers and insights they won't have without trying things to see what works to feel better. So you are right about that too. Never stop trying. Sometimes all you have is trying, no appreciable results. But you have the trying and trying counts.

 

[Badger]

There sure is a lot of symptoms, it really makes you think, there's something very wrong somewhere, why else would it be? So there must be something fundamentally wrong to cause to much suffering otherwise how could it be? I've lost count of the injuries that I've picked up and all of the s_its have pulled on me to this day. Anyway spell correct is doing me a favour a bottle of whiskey in, I raise a gentle glass to all those who suffer and sod the rest life's hard enough and we've been through enough. Bless you, take care, be gentle, take care.

 

[Auriel]

Cheers @Badger!!!

 

[SH3]

Well, no wonder every time I complain of something my DR says its my Fibro. But she always looks into it. Right now I am getting terrible stomach pains and heart burn every time I eat...ok even when I don't eat.. and rib pain. My night vision has gone to shit and sometimes I get very overwhelmed if to many noises are taking place at the same time. My boss really needs hearing aids, my office is right next to his. He will be watching some video on his computer, he also has a ring doorbell that chimes in his office for his house and the outside parking lot that go off all day long. The mix of the two things coming from his office drives me to just walk away for 10/15 minutes. I still fight with my PCP that I don't have Fibro ..she just rolls her eyes at me. I don't see denial on that list lol

 

[JayCS]

Right now I am getting terrible stomach pains and heart burn every time I eat...ok even when I don't eat.. and rib pain.

Stomach hyperacidity and costochondritis, perhaps?
(Avoiding certain food triggers, chewing almonds; and stretches, exercises for back, chest ribs (youtube) may help.)

 

[Rainbow]

SH3 I totally relate to the Environmental Sensitivity, especially noise levels &/or repetitive sounds, which are like Chinese Water Torture
& under the difficult circumstances you describe, I think you are doing well coping with your work situation,
I would've walked away permanently, never mind for 10/15 mins.

Speaking as someone who, by necessity, has 3 young grandchildren staying here in my tiny space alternate weekends,
I know what it is to be trapped in barely bearable & sometimes, unbearable, circumstances & it's challenging to say the least!

PS: Your digestive etc symptoms may be part of heightened anxiety but it's worth getting a physical check-up just to rule out other possible causes, such as Esophageal disorders eg Inflammation etc.

 

[sarahloudobby]

Just read through that list I think I have over half those symptoms