Appetite

kcc73

Active member
Joined
Jan 29, 2025
Messages
33
Reason
DX FIBRO
Diagnosis
02/2025
Country
UK
Hi Again
I hope you are all having a (🤞🤞) an easier time. If you in the UK do you find the sunshine helpful ? It Def improves my mood but this has been the worst year fatigue wise & just no energy to sit out to enjoy it. Went for 10 min walk the other day and thought it went well though 10min my limit. But soon after crashed !!

So I'm side tracking: I've had a poor overall appetite for a few years & it just seems worse as the fibromyalgia & chronic fatigue continued. GP never enquired into my poor appetite ! Wondered if it a common thing.
IM not losing weight really. Which I think is a mix of v slow metabolism (I'm female and 50!) and not exercising much.

The fatigue has got a lot worse as weeks passed and if you read my rant , GP wSbf listening & I told the lower Hb was normal for me ! I tried to switch to another GP I know but told yesterday my practice manager I can't ! And need stick with my current go as I have chronic problems. *Sigh*. But then out blue I got text from my GP saying following my last consultation (I did send econsult when I was feeling so ill. , couldn't get out bed & told make GP.app 3 wks!). Well she said she contacted haemotologist to ask about iron infusion & I have been permitted to. Have one. I'm stunned ! Now can't wait to have it with hope feel better. Anyone had one.

Any feedback from about would be great.
Tks x
 
Hi @kcc73
I find that weather affects me quite a bit. I live in the desert because a dry, hot, and almost always sunny climate suits me the best, despite the fact that I have difficulties with allergies almost all year around. When I am in a chilly or cold, wet foggy climate, the pain is considerably worse. And if I don't see the sun for a couple of days it starts to negatively affect my mental state. But some others report that a cold damp climate is best for them, and they don't tolerate heat well. I think it all depends on your physical metabolism, which is genetically determined.

I wish I knew what to do about fatigue; nothing I have tried really helps much with that. Let us know if the iron infusion helps!
 
Hi there,yes I am in the U.K, I live on the south coast of England and I definitely feel better when the sun is shining both physically and mentally. Yesterday was the warmest day of the year, my husband and I went out in the countryside for a walk and when we returned I was shocked to see I had walked over 10,000 steps which is amazing for me and I swear it was because of the warmth of the sun.

I do hope the iron infusion does something for you and let us know how it goes, the fatigue is definitely one of the worst symptoms and like you I also suffer with loss of appetite but I don’t know if it’s the fibromyalgia or my many allergies that causes it.
Take care xx
 
Thank you. Yes the sun is definitely the best. Unfortunately I've not managed to go out much , occasional v short walks then I'm done for !! I've sat in garden short spells. As far as my appetite, just not hungry . IBS doesn't help. So pleased & encouraged by hearing about your day out. A couple wks ago my husband had day off and we went out for coffee sitting outside and sone shops which I wouldn't normally manage- but having my husband who knows me and having nice time and can push self more. I had a coffee with a friend not seen for a yr but I've told about my health , last month , and she didn't ask me at all how I was But was feeling dreadful. Be interesting to see how I am after iron infusion.
Best wishes
 
Hi Again
I hope you are all having a (🤞🤞) an easier time. If you in the UK do you find the sunshine helpful ? It Def improves my mood but this has been the worst year fatigue wise & just no energy to sit out to enjoy it. Went for 10 min walk the other day and thought it went well though 10min my limit. But soon after crashed !!

So I'm side tracking: I've had a poor overall appetite for a few years & it just seems worse as the fibromyalgia & chronic fatigue continued. GP never enquired into my poor appetite ! Wondered if it a common thing.
IM not losing weight really. Which I think is a mix of v slow metabolism (I'm female and 50!) and not exercising much.

The fatigue has got a lot worse as weeks passed and if you read my rant , GP wSbf listening & I told the lower Hb was normal for me ! I tried to switch to another GP I know but told yesterday my practice manager I can't ! And need stick with my current go as I have chronic problems. *Sigh*. But then out blue I got text from my GP saying following my last consultation (I did send econsult when I was feeling so ill. , couldn't get out bed & told make GP.app 3 wks!). Well she said she contacted haemotologist to ask about iron infusion & I have been permitted to. Have one. I'm stunned ! Now can't wait to have it with hope feel better. Anyone had one.

Any feedback from about would be great.
Tks x
Hi!sorry to hear of your worsening symptoms.the cold weather is a menace to a fybro suffererer.the flare ups I get quadruples and it gets me really down.i have recently also had a full blood count and found I’m anaemic which could be linked to other fybro sufferers.i’ve had low iron quite a few times so don’t know if this is linked to fybro?was put on duloxetine 120 mg had it gave me horrendous heartburn.my osophegous was on fire right to my stomach.i couldn’t eat anything.fatigue is something that I’ve had for 30 years in pits and troughs,one day I’ll feel like I’m virtually asleep all day,body aching,head banging,stomachs killing just awful.i’ve been on a right rollercoaster.lifes not been too kind on the health dept and from a veteran who’s took every med under the sun including reletrans and fentanyl the fybros still there.walking,rest,swimming,sauna,reading are the only medicine because like the verve said,the drugs don’t work!I hope you find the right doctor.don’t give up!
 
Back
Top