kait0220
Member
- Joined
- May 28, 2020
- Messages
- 23
- Reason
- Undiagnosed
- Diagnosis
- 00/0000
- Country
- US
- State
- VA
Hi everyone,
(28 F) Just today my doctor brought up that my symptoms could be fibromyalgia. I have had a series of unexplained symptoms for at least 6+ years now. I will try to explain, but they are kind of all over the place. My first complaints were of these few second intervals for lightheadness and blurred vision multiple times a day. Abdominal pain, GI issues, occasional chest pain and heart palpitations. Depression and anxiety came next. I bruise like an overripe banana and wounds take ages to heal. Over the past year my symptoms have only gotten worse. I've been having a lot of trouble just finishing sentences - I start to talk and then stutter or can't find the word. I'm incredibly intolerant of heat. I would walk to work in 30 degree weather with no coat on. Headaches, and now a lot of pains in my hands, wrists, toes, shins? (not carpal tunnel pain though). The pain is like in the meaty part between my thumb and index finger. I'll be completely awake and then just desperately feel the need for a nap. A few months ago I felt like I was having a heart attack (which the EC doc said was a panic attack - I've had panic attacks, they never give me chest pain and hand tingling) At least twice now I've woken up with one eye really swollen and an odd rash across half my face (hence the lupus test, not pink eye though either)
I've been in and out of various specialists, had tons of blood work and everything always comes back "fine." While everyone would think that negative results are good, it's just frustrating for me. I don't know what I can do to help myself. RA - negative, hormones - good, lupus - negative, diabetes - no, lyme - negative. No inner ear issues, no heart issues, no sleep apena, stomach bacteria are fine (I had to drink powdered URINE for that test!). MRI a few years ago was fine. I thought about MS as well, but these things are so hard to diagnose. Are all the symptoms not related and I just have 14 different unrelated issues?
I'm really frustrated and nervous. If I had a diagnosis, then at least I would know what I was dealing with. I would have an idea of what to do or not to do. Should I not be knitting? Will that make the pain worse? Should I not be weightlifting? Should I be eating some kind of anti-inflammatory magic berries every day? I'm hoping that someone here can give me some advice on if my story warrants further investigation into this diagnosis.
Thanks everyone ❤
TLDR on worst symptoms - headaches, fatigue, hand pain, heat intolerance
(28 F) Just today my doctor brought up that my symptoms could be fibromyalgia. I have had a series of unexplained symptoms for at least 6+ years now. I will try to explain, but they are kind of all over the place. My first complaints were of these few second intervals for lightheadness and blurred vision multiple times a day. Abdominal pain, GI issues, occasional chest pain and heart palpitations. Depression and anxiety came next. I bruise like an overripe banana and wounds take ages to heal. Over the past year my symptoms have only gotten worse. I've been having a lot of trouble just finishing sentences - I start to talk and then stutter or can't find the word. I'm incredibly intolerant of heat. I would walk to work in 30 degree weather with no coat on. Headaches, and now a lot of pains in my hands, wrists, toes, shins? (not carpal tunnel pain though). The pain is like in the meaty part between my thumb and index finger. I'll be completely awake and then just desperately feel the need for a nap. A few months ago I felt like I was having a heart attack (which the EC doc said was a panic attack - I've had panic attacks, they never give me chest pain and hand tingling) At least twice now I've woken up with one eye really swollen and an odd rash across half my face (hence the lupus test, not pink eye though either)
I've been in and out of various specialists, had tons of blood work and everything always comes back "fine." While everyone would think that negative results are good, it's just frustrating for me. I don't know what I can do to help myself. RA - negative, hormones - good, lupus - negative, diabetes - no, lyme - negative. No inner ear issues, no heart issues, no sleep apena, stomach bacteria are fine (I had to drink powdered URINE for that test!). MRI a few years ago was fine. I thought about MS as well, but these things are so hard to diagnose. Are all the symptoms not related and I just have 14 different unrelated issues?
I'm really frustrated and nervous. If I had a diagnosis, then at least I would know what I was dealing with. I would have an idea of what to do or not to do. Should I not be knitting? Will that make the pain worse? Should I not be weightlifting? Should I be eating some kind of anti-inflammatory magic berries every day? I'm hoping that someone here can give me some advice on if my story warrants further investigation into this diagnosis.
Thanks everyone ❤
TLDR on worst symptoms - headaches, fatigue, hand pain, heat intolerance