I am on some but none that are made for fibromyalgia. I have xanaflex I use and on meds for depression and anxiety. The depression and anxiety has been hard to deal with.Hello - I am female in my early 50's diagnosed in January. Trying to cope with this without prescription meds!
I know how that feels. Overwhelming. I was seeing all kinds of doctors and I just stopped going. I was so overwhelmed and stressed over it. I was already diagnosed and tried several medications that were making me sick. What I done was printed off a bunch of web pages with symptoms that related to what I had and took them to my doctors and got diagnosed that way. They weren't listening and I knew what it was and that was the only thing that got me diagnosed quicker.I have seen a neurologist and she was the one that diagnosed me, then she moved to another State. I am in a holding pattern of tired of doctors etc right now. I spent 2 years at appts and having alot of tests etc. Right now just living my life dealing with this each day with whatever it throws at me. Doing alot of research and hoping to find something that will work to put this thing in some kind of remission.
Yes my neurologist found i have compressed nerve roots in my neck and back. Recommended massage therapy for it but I have to get this pain under much better control before I can try that.I know how that feels. Overwhelming. I was seeing all kinds of doctors and I just stopped going. I was so overwhelmed and stressed over it. I was already diagnosed and tried several medications that were making me sick. What I done was printed off a bunch of web pages with symptoms that related to what I had and took them to my doctors and got diagnosed that way. They weren't listening and I knew what it was and that was the only thing that got me diagnosed quicker.
Good luck to you and hopefully you get some treatment soon. It can be hard to get some doctors to go along with a FM diagnosis since they can run all the test and make money. That's how the health care system here works at least.
I also seen doctors in a different city to get confirmation. Only 1 Dr noticed that I had a non displaced fracture at T12 as well. I think it was a Nuevo dr who discovered it.
I seen several Neuro doctors but I also had the best Rheumatologist in town after I was diagnosed.Hello,
I was reading through your thread and though i'd offer up my experience.. hoping it may give some insight. I was only diagnosed in Feb. of 2019, so am still new to this. I was EXTREMELY lucky and found a great Rheumatologist right off the bat to help me with the FM. I had gone to a PCP who referred me to a Rheumatologist.. and I am SO happy I saw her. I realize a lot of people prefer to go without medications and most people don't have the luck that I had with finding a Dr who I like and trust.. but I saw that you'd been seeing a Neurologist and wondered if you had ever tried a Rheumatologist. Again, I also completely understand not wanting to invite medication into your life. I, on the other hand, needed some kind of management with some extra help due to other conditions such as Depression and Anxiety. Finding a good Dr. can be one of the hardest things and not wanting to go back to Dr's after not having success is 100% understandable. There are good supplements that have helped people with FM as well. I know that I myself take D3, B12 and Magnesium and have found them all to be useful. I wouldn't say they take away FM pain, but I found them to be beneficial in other ways. I also take epsom salt baths and find those to be very helpful on bad days. I have also gone to Physical Therapy for the pain as well and found that to be very, very helpful. I hope this was at least helpful to read
I used to be that way, not in pain everyday,but after 14 years,it's come to that.It's so tricky! I started off on gabapentin and more and more medications were added and eventually it was like.. i'm on too many medications now and i'm still struggling, this is crazy. So now i'm on Cymbalta and off all gabapentin. It's been the most successful for me so far. I do have Tramadol I take as needed and that's been ok. I haven't felt any addictive qualities from taking that as needed, but I also understand it's different for everyone. Something that has worked for me won't necessarily work for someone else. I also do not have daily pain, it comes and goes. So I consider myself fortunate.