Blood pressure cuff pain

Invisable girl

New member
Joined
Sep 22, 2021
Messages
2
Does anyone else find blood pressure cuffs nearly unbarable? Do you have any suggestions for coping with it? I question if the readings can be accurate under the circumstances.
 

Marvis

Distinguished member
Joined
Jan 28, 2017
Messages
148
Reason
DX FIBRO
Diagnosis
05/2016
Country
CA
State
Ontario
Oh yeah! I have had this in the past where I thought something was wrong with the cuff because it hurt SO much!!! It hasn’t been as bad recently - I don’t know if our office switched to a different cuff or if I’m not as flared. I would just mention it next time ‘I’m not sure if it’s my Fibro or the cuff, but it really hurt last time.’
 

KEvans

New member
Joined
Sep 7, 2021
Messages
1
I'm so glad to see someone else commenting on this. My husband and my doctor have both told me I was being a bit of a baby about it, but my goodness it really is nearly unbearable!
 

MsRant

Member
Joined
May 7, 2021
Messages
16
Reason
DX FIBRO
Diagnosis
10/2005
Country
US
State
VA
Especially with my new BP issues this hits hard! Yes, you are not alone! Every single time I get my BP taken I know I am going to have to deal with hours/days of numbness.

Anyone who berates you for the pain can bugger off!!!! That thing HURTS!
 

mycatJack

New member
Joined
Jun 20, 2021
Messages
2
Hello Invisible Girl

Pain from blood pressure arm cuffs is so common in fibro patients that it is now considered a diagnostic test for fibromyalgia itself. The pain even has a name: Sphygmomanometry-evoked allodynia.

Like you, I have fibromyalgia and suffer excruciating pain from BP arm cuffs. I would start to cry even before the cuff went on, knowing the pain I was about to suffer as well as the arm pain I would have to endure for weeks to come. Then I did some research and learned about the studies done on BP arm cuff pain in fibro patients. The pain is REAL. Trials have been conducted and research has been published that confirm the connection between fibromyalgia and pain from BP arm cuffs. We are not weaklings or big babies! Please do not allow anyone to say this to you!

The solution to BP arm cuff pain is to use a BP wrist cuff. Now when I go to the doctor or dentist, I ask for the wrist cuff and I never experience the stomach-turning pain I used to with the arm cuff. I even bought a wrist cuff to use at home. I never would have imagined taking my blood pressure could be a painless affair!

I have had fibromyalgia for 35 years, so my doctors know I'm not a newbie to this misery, yet not one of them ever offered to use a wrist cuff on me. Looks like we have educating to do! Ask - no, insist! - on a BP wrist cuff every time you go to the doctor. Tell them about the link between pain and arm cuffs in fibro patients. You'll be easing your pain and teaching the doctor something at the same time. Win win!

This is my first post on the forum, but I understand your pain so acutely that I had to stop lurking and start typing. I hope this info helps you. I hope you have success with the wrist cuff and that at least one of the many miseries of fibro can be resolved for you.
 

Jemima

Very helpful member
Joined
Jul 30, 2020
Messages
508
Reason
DX FIBRO
Diagnosis
11/2019
Country
PT
Hello Invisible Girl

Pain from blood pressure arm cuffs is so common in fibro patients that it is now considered a diagnostic test for fibromyalgia itself. The pain even has a name: Sphygmomanometry-evoked allodynia.

Like you, I have fibromyalgia and suffer excruciating pain from BP arm cuffs. I would start to cry even before the cuff went on, knowing the pain I was about to suffer as well as the arm pain I would have to endure for weeks to come. Then I did some research and learned about the studies done on BP arm cuff pain in fibro patients. The pain is REAL. Trials have been conducted and research has been published that confirm the connection between fibromyalgia and pain from BP arm cuffs. We are not weaklings or big babies! Please do not allow anyone to say this to you!

The solution to BP arm cuff pain is to use a BP wrist cuff. Now when I go to the doctor or dentist, I ask for the wrist cuff and I never experience the stomach-turning pain I used to with the arm cuff. I even bought a wrist cuff to use at home. I never would have imagined taking my blood pressure could be a painless affair!

I have had fibromyalgia for 35 years, so my doctors know I'm not a newbie to this misery, yet not one of them ever offered to use a wrist cuff on me. Looks like we have educating to do! Ask - no, insist! - on a BP wrist cuff every time you go to the doctor. Tell them about the link between pain and arm cuffs in fibro patients. You'll be easing your pain and teaching the doctor something at the same time. Win win!

This is my first post on the forum, but I understand your pain so acutely that I had to stop lurking and start typing. I hope this info helps you. I hope you have success with the wrist cuff and that at least one of the many miseries of fibro can be resolved for you.
Fantastic share, mycatJack. Thank you 🌷
 

JayCS

Very helpful member
Joined
Sep 5, 2020
Messages
654
Reason
DX FIBRO
Diagnosis
02/2020
Country
GE
Talking about bp, a lot of my supps reduce it, so I'm testing going without the meds. Same goes for my blood fat meds (statin plus) after my strict Mediterranean diet reduced them far below the target. (I hope the Ribose, being a sugar, isn't gonna put a spoke in that wheel.)
(Or any of the other new supps for that matter.) As my bp often rockets when 'white coats' take it, we rely more on the ones I do at home. Didn't realize at first that your arm needs to be horizontal and that it often takes more than 5' to come down.
Getting everything checked again soon: I hope for the best...
 

sunkacola

Very helpful member
Joined
Dec 2, 2016
Messages
1,508
Reason
DX FIBRO
Diagnosis
00/0000
Country
Uni
State
Somewhere
I'm so glad to see someone else commenting on this. My husband and my doctor have both told me I was being a bit of a baby about it, but my goodness it really is nearly unbearable!
While I have not had pain from a blood pressure cuff (probably because my blood pressure is only taken at most once a year), I can relate to this. For me, on bad days the slightest little bump or pressure will make me gasp with pain. Things that, on a good day, I wouldn't even notice. I have done a lot of physical work in my life, and at times I would find a bruise on a leg or somewhere like that and never know how I got it because my pain threshold is high and I was concentrating on something else. But now, on flare days, something far less than anything that would leave a bruise is excruciatingly painful.

Someone who has not experienced this, or other things about fibro, won't understand. But you are not being a baby! It's very weird, especially when it is not like that all the time, but the folks who are around you and care about you just need to learn to accept what you say.
 
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