- Sep 5, 2020
- DX FIBRO
Delving into that is diverging long off-topic - so in italics...i’m sad for you cos you try really hard with different concoction
Thanks - yeah... Generally since getting the MCAS on top I'm getting regularly closer to my wit's end.... with a certain amount of sadness, inner exhaustion, exasperation...
100s of treatments at my finger tips, not just the 50 concoctions [see below], prepared to implement them, 'research' more, trial and analyze no end, every day all day and night. And still having difficulty getting my energy up from 10% to 20% or more, my sleep's suddenly got really difficult again....
But to clarify: I do actually still usually get my burning pains down, even quickly, by increasing other "potions", like GABA.
My local pains with exercises / stretches / acupressure. And my gut by strictly avoiding food triggers.
So I still have a fairly high quality of life considering "I can hardly move around much"....
There are however many things I use that I don't immediately sense, and supps like B-vitamins are one area which seem to be helping only indirectly. I tried stopping 5 supps the other day that I thought might not be doing much: it showed - so back to ~25.
(I actual thought a concoction is something like a witch's magic "potion", had to look it up - is there another similar word? And had to look up witch's/witches too... )
If the Chinese acupuncture doesn't work out, I'll just be back in acceptance mode. And I think my condition will then be more stable, cos acupuncture does make my body 'work', causing lots of ups, half-ups, and downs...
I'm actually starting to retire from my work even more. Formally by having to decide to take all my tons of overtime next year. (Meaning I can continue like now working a little bit, but no longer using sick leave notes.) And practically, by throwing away stuff I now "know" will not be needing any more....
I was struggling to get to 40% "energy" even before MCAS. Now I'm losing sight of further recovery of enough energy.
There's still a little hope that the Chinese acupuncture can get me at least back up to 30% like it did a few weeks ago.
But my wife no longer shares this hope....