CBD for Fibro?

courtneypaigep1

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Hi all - I am in a bit of a rut. My GP is refusing to give me any painkillers as she doesn't like giving painkillers out for chronic conditions, told me that "With Fibro, they just don't know" and "Fibromyalgia is a condition they diagnose you with if they don't know what's wrong with you", just told me to try swimming or take half a naproxen when I have a flare up.

I just feel like I'm not getting any help from anywhere and I am in pain every day. Tried to look at what else I can do - ie reducing sugar intake which I have done, bread etc....
After having a conversation with my boss, he suggested CBD as that is meant to help.
I have seen you can have CBD oil, capsules, balm and patches.

Has anyone tried CBD for their fibro? What was your experience?
 
Many of us on this forum have tried, or currently use, CBD. Most people find that unless it is combined with THC it does very little for fibromyalgia pain. But this is a highly individual thing, so if you want to know you will just have to try it and find out. Be sure to start with a very small dose and work up to a higher one if you don't see any results. And don't buy CBD over the internet, because there are many places that are scams and you'll be paying a premium for just coconut oil. You have no way to know what you are getting if you buy it on the internet. Get it at a dispensary.

For me, CBD alone does absolutely nothing. combined with CBG and THC and a few others, it can definitely help, but it is not something I can use all of the time because I don't want to be stoned.

You mention that you have tried cutting down on sugar and so on, but I am wondering if you gave those things a long enough time to make a difference. Changing diet to the most healthy diet you can possibly manage will help because it will improve your overall health and strength, making your body better able to handle everything including fibromyalgia.

But cutting out sugar, or gluten, or any one thing like that in order to find out if it will help is something that you have to do very strictly (meaning reading every food label and making sure there's not one atom of sugar or gluten or whatever in what you eat), and do so for over a month in order to know if there's any effect. Just reducing your intake of something won't do anything. If you haven't done a total ban on the thing for long enough, you have not really found out if those things will help.

What your doctor said, while being rather dismissive and certainly not helpful to you, is actually pretty much true. Doctors don't know much about fibro, and none of them can tell you what diet or medication will help you because we with fibro are all so different that what helps one person won't help another. We've had people on this forum say this or that medication ruined their life, while others said it gave them a life. So again, you just have to try things to find out.

The other thing the doc said is, unfortunately, also true. Fibromyalgia is a condition defined by having chronic pain and other various symptoms for which no medical cause can currently be found. So the doctor was actually speaking the truth, although it seemed ...and no doubt felt....as though they were blowing you off. Not very nice for them to have spoken to you that way, though, not helpful. Fibromyalgia is real even if they don't understand it.

Medication doesn't help everyone, and most of us who are taking some form of medication have been through many that didn't help before finding one that does. If we even find one that does.

There are things you can do that might help, and suggestions for these things are given in the post called "My advice for managing fibromyalgia" at the top of the General forum.

What can also help, at least a bit, is to know you are not alone, and we are here for that. We can tell you what things worked for us and what didn't, and there are many options for that. And we can encourage each other and be supportive. We welcome your questions and your participation here.
 
Hi all - I am in a bit of a rut. My GP is refusing to give me any painkillers as she doesn't like giving painkillers out for chronic conditions, told me that "With Fibro, they just don't know" and "Fibromyalgia is a condition they diagnose you with if they don't know what's wrong with you", just told me to try swimming or take half a naproxen when I have a flare up.
I was in the same place. I was told I had fibro by a chiro I seen by accident once.
My gp said the same thing, no such thing as fibromyalgia and I asked to be referred to a rheumatologist to help manage my symptoms.
Well he was awesome, and yes told me I had fibromyalgia and started on palexia.
I still couldn’t handle all this new pain so I got very down.
Well a big thanks to my awesome osteopath. He was worried about me and got me into the local gp who did arrange for MM.
I have been on it two years now “ personally I found it a great help, specially at night. It helps me greatly with sleep. I am on THC .5ml at night and only needed to up it once.
I just feel like I'm not getting any help from anywhere and I am in pain every day. Tried to look at what else I can do - ie reducing sugar intake which I have done, bread etc....
After having a conversation with my boss, he suggested CBD as that is meant to help.
I have seen you can have CBD oil, capsules, balm and patches.

Has anyone tried CBD for their fibro? What was your experience?
I did have an oil to take 3 times a day as well but can’t get that stock at the moment . But that’s ok as I find i personally need it at night more.
I have been thinking about going the capsule way but it more costly than just oil here.
 
I also use CBD/THC at night. I use a tincture form, and sometimes gummies, since I don't want to smoke anything. It helps with pain and also it helps me to sleep better. I wish I could take it in the daytime as well, but since I don't live with any other human being and am entirely responsible for my animals and live 30 miles from town, I really can't take a chance on being stoned if there's an emergency or just something I have to take care of. And frankly I don't like feeling stoned unless it is at night. (I know an emergency can happen at night too. I just have to take a chance on that, since I sleep under medication in any case or I wouldn't sleep at all).
 
First of all, @courtneypaigep1 get a new doctor. The things your doctor said do not negate the very real fact that you are in pain. She's gaslighting you. Don't accept that.

I've tried delta-8 cannabis (CBD + THC) upon my own doctor's suggestion. However, I DO have a prescription painkiller. The delta-8 did help with pain, but I stopped taking it because, for me, the side effects were too much, mainly paranoia and increased anxiety (I suffer from anxiety and panic disorder). I could not afford medical marijuana, so I purchased online from a local, reputable company in vape form. I started with edibles but 1) they take too long to take effect and 2) dosing is difficult with edibles. With the vape I was sometimes able to get just the right amount to reduce my pain without added anxiety or panic, but only sometimes. I'm very sensitive to CNS drugs, so even the smallest change in the amount I vaped would often have adverse effects for me.

As for CBD alone, did nothing for me at all.

My advice: if you are experienced with cannabis and know your mind's reaction, give it a shot. Be careful if you are taking additional CNS drugs. The FDA recommends no more than three. Even caffeine counts. Or supplements like melatonin for one example. Even so, at my highest, I was taking about 5 CNS drugs without any serious side effects. Watch out for drug interactions. Give it a shot, and let us know how it worked for you.
 
@JamieMarc , just a suggestion...........have you tried tinctures? That's what I have liked the best. It's not something you smoke or vape (both are extremely damaging to your lungs) and it doesn't take as long as an edible like a gummie does, because it doesn't have to go through your digestive tract before it gets to your blood system. I hold a dose of tincture under my tongue for about 30 seconds and the mucus membranes absorb it. Effects start in less than 15 minutes. And it's super easy to regulate the dose because you can see exactly how much you are getting in the dropper.
 
I was in the same place. I was told I had fibro by a chiro I seen by accident once.
My gp said the same thing, no such thing as fibromyalgia and I asked to be referred to a rheumatologist to help manage my symptoms.
Well he was awesome, and yes told me I had fibromyalgia and started on palexia.
I still couldn’t handle all this new pain so I got very down.
Well a big thanks to my awesome osteopath. He was worried about me and got me into the local gp who did arrange for MM.
I have been on it two years now “ personally I found it a great help, specially at night. It helps me greatly with sleep. I am on THC .5ml at night and only needed to up it once.

I did have an oil to take 3 times a day as well but can’t get that stock at the moment . But that’s ok as I find i personally need it at night more.
I have been thinking about going the capsule way but it more costly than just oil here.
Hi!I think your doctor was rather brutal with you.he should have put you on duloxetine and a painkiller I.e low dose tramadol if you are in constant pain.to be frankly brutal if you have been diagnosed with fybro then it is really trial and error.i haven’t myself tried thc,they say its good for fybro so might try it.i currently take fentanyl patches at 70 mcg,citalopram,diazepam when needed and tramadol.the fentanyl patches are a winner if you get the right dose but its not easy to get them.its only because I’ve been through every med going.you need to go back to the docs or get referred so they can assess you and put you on the right med that should hopefully ease it.i wouldn’t rely on thc.i dont really want to be stoned.yes i would like to try and yes it might help but if you’ve got fybro bad you’re in for a tough battle ahead to get on top of your pain.read the threads and judge for yourself what you think is the best option.no 2 people are the same.i wish you luck and don’t be fobbed off by the docs👍
 
@sunkacola
Thanks! No I haven't tried a tincture. Can you tell me what tincture you use? Is it Delta 8? Something different? I'm pretty sure my local company that I mentioned does sell tinctures, but I never thought to try it. I'm happy to hear that it is easier to dose and I'm really interested. And I love the idea that I'm not hurting my lungs plus easier dosing.
 
@sunkacola
Thanks! No I haven't tried a tincture. Can you tell me what tincture you use? Is it Delta 8? Something different? I'm pretty sure my local company that I mentioned does sell tinctures, but I never thought to try it. I'm happy to hear that it is easier to dose and I'm really interested. And I love the idea that I'm not hurting my lungs plus easier dosing.
I use whatever tincture the dispensary has. (Never heard of Delta 8). There was a particular brand I liked the best, but now they don't carry it any more. One thing I have noticed is that what they have is always changing so I have to not get attached to any one thing. That's how it is here, maybe different at the place you go. As long as you are getting it at a good and proper dispensary it doesn't matter the brand all that much, I have found, as long as the strength is the same.
Just don't buy it online because it's too easy for it to be a scam.
 
Hi!I think your doctor was rather brutal with you.he should have put you on duloxetine and a painkiller I.e low dose tramadol if you are in constant pain.to be frankly brutal if you have been diagnosed with fybro then it is really trial and error
Yes too blunt that’s for sure. he was a great dr , my favourite, could ask him for any med and he’d give it to me. Just dismissed the fibro. He accepted it once the rheumatologist confirmed fibro.

.i haven’t myself tried thc,they say its good for fybro so might try it.i currently take fentanyl patches at 70 mcg,citalopram,diazepam when needed and tramadol.the fentanyl patches are a winner if you get the right dose but its not easy to get them.its only because I’ve been through every med going.you need to go back to the docs or get referred so they can assess you and put you on the right med that should hopefully ease it.
I was on 300 mg tramadol twice a day, fentanyl 50 mg patch, endone. Definitely was a walking zombie. So that’s when I went to pain specialist and got off them all and started back on different meds and low dose, and my body thanked me for it.

i wouldn’t rely on thc.i dont really want to be stoned.yes i would like to try and yes it might help but if you’ve got fybro bad you’re in for a tough battle ahead to get on top of your pain.
me too I am so anti drugs, my brothers were hooked on pot, we all swear it changed them and now have schizophrenia. The pot ruined my younger brother , he didnt look after himself just wanted his pot . So he ended up having a cardiac arrest and we lost him at 42 leaving behind 6 kids and 5 grandkids.
I felt like a real hypocrite using the mm oil. But my family understand that it’s a need for my sanity and some relief .
I definitely never get stoned, though just a little relaxed and a great help in getting my sleep.

read the threads and judge for yourself what you think is the best option.no 2 people are the same.i wish you luck and don’t be fobbed off by the docs👍
I definitely have started to stand up for myself, will be trying a bit harder too
 
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