Hi Broken,
When my first child was very young, I didn't agree with the doctor's decision or something to that effect. I was nervous about telling him this. But after I talked and talked and cried with my cousin, she said to me to remember that a doctor PRACTICES medicine. They're human and therefore cannot always be right about everything.
On that note, I have been told that you need to be careful not to diagnose yourself. That instead, present your observations of your illness (es) to your Rheumatologist and also share your resesrch, just as you did. The doctor AND the patient are experts in their own right. The doc is the academic (hopefully with lots of experience) the patient is a living example. I believe that a well informed individual will have more pertinent questions and documentation that will help you and your doctor (s).

Personally, I feel everyone is different, despite all of our disease commonalities. You have to do what is right for you and find a rheumatologist who will work with you.
Sorry for rambling on.
