Chrinic pain, long covid & fibromyalgia diagnosis

LouEm

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Oct 13, 2022
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This is my first time posting. I have suffered from chronic pain for over 25 years (specific areas only) & have unfortunately had covid twice. Since the second time my health has deteriorated & my pain worsened to the point it is everywhere as well as far more debilitating . My gp wants the pain clinic I have been referred to will look to diagnos me with fibromyalgia. Every bone, every muscle is so painful. Has been a flare-up of 6 weeks at the moment & have had to stop driving because of fatigue & weakening muscles (not going anywhere). At the moment would like advice & support from other fibro sufferers. My partner is so supportive but neither if us understand if what we have been told is definitely fibro & how we can best work together to get me back to being able to work & drive. Thanks in advance.
 

sunkacola

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Hi LouEm, and welcome to the forum.

It sounds to me as if there is no certainty that you have Fibromyalgia, and I want to caution you against jumping to that conclusion prematurely. If in fact you have long covid, that can explain your worsening symptoms and it will eventually fade or even go completely away.

Now, the long term pain is another thing, but if it has been specific areas that again throws the fibro question into the realm of possibility rather than certainty. Fibromyalgia is characterized by widespread and bilateral pain, so if your pain has typically been only your legs or only neck and lower back, for instance, that is not commonly indicative of fibro. Do you know a cause for the long term pain you have had? Accident? Anomaly in some area of your body? Illness? It would be helpful to know these things.

Now, I am not saying you don't have fibro, maybe you do. I am suggesting, however, that if you have absolutely no idea why you have had pain in certain areas of your body for 25 years, you need to see doctor(s) to attempt to diagnose the reasons. If you have some idea (like, it started after that car wreck), then you need to look into why it has gone on so long. Often fibro is diagnosed only after all of the other many things, incidents, syndromes and diseases that cause chronic pain have been eliminated for an individual, because it is not called fibro unless there is no cause for the pain that can be found medically.

All the above is just suggestions on what steps might be wise to take now.
for advice on how to manage things today and in the future, I recommend this post:


Best of luck and I hope this forum will be helpful to you. That's what we are here to do.
 

JayCS

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Anyone with new or increased fibro-like symptoms due to Covid-jabs (like me) oder catching Covid (like you) should be considering having MCAS, mast cell activation syndrome, see Youtube: dp2sMQi4PUo
Help for long Covid - foods to avoid - supplements to take - with Dr Tina Peers, specialist in MCAS
Treating it as MCAS may improve it again quite a bit. And treating it as fibro as well.
 

LouEm

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Oct 13, 2022
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Undiagnosed
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00/0000
Country
UK
State
SC
Hi,
Firstly I want to apologize for taking so long to reply. I've been in a very dark place, mainly due to one med I was put on not so long ago (gabapentin). I have now come off this and started on Robaxin (muscle relaxant) & I already feel much more stable mentally. My pain levels fluctuate & at their worse I am incapacitated and nothing eases the muscle spasms or joint pain. I have my appointment with a specialist pain consultant on 30th so will hopefully have a path & focus for moving forward to live with whatever this is or find a way to be at least partially pain free so I can enjoy life again (& be able to ride my motorbike again). I appreciate all the support and advice. Thank you.
 
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