CPAP

Con

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DX FIBRO
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Does someone have experience with a CPAP machine? I have hypopnea (low oxygen) versus the apnea. It has been a month and not telling the difference. My sleeping is the same - sporadic with set bedtime. Energy is still drained and pains the same. I have heard give it six - eight weeks. Your thoughts? I am not the typical person supposedly to have this machine.
 

shoshosho

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Joined
May 27, 2022
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DX FIBRO
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05/2022
Country
US
State
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My Neurologist suggested a sleep study because of the fatigue. Tried CPAP for three months, first the nose hose, didn't work awful burning. Switched me to the mask no luck. Could not sleep and made it worse. Everyone I know that has gone for a sleep study needs a CPAP. Seems to be a lot of money in it for the medical suppliers. Bottom line did not work for me at all. I had abnormal deep breathing cycles, don't know if that is the same as low oxygen, I don't snore. This was before my Fibro diagnosis. Neurologist still pushing to go back to CPAP. By the way my PC said I was borderline and I was on a low setting so he agreed I was not a good candidate and the deep breathing cycles were probably affected by my meds which I was told to take the night of the sleep study. If it does not work, or makes it worse then don't use it.
 

Con

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DX FIBRO
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My Neurologist suggested a sleep study because of the fatigue. Tried CPAP for three months, first the nose hose, didn't work awful burning. Switched me to the mask no luck. Could not sleep and made it worse. Everyone I know that has gone for a sleep study needs a CPAP. Seems to be a lot of money in it for the medical suppliers. Bottom line did not work for me at all. I had abnormal deep breathing cycles, don't know if that is the same as low oxygen, I don't snore. This was before my Fibro diagnosis. Neurologist still pushing to go back to CPAP. By the way my PC said I was borderline and I was on a low setting so he agreed I was not a good candidate and the deep breathing cycles were probably affected by my meds which I was told to take the night of the sleep study. If it does not work, or makes it worse then don't use it.
I had been pushing the sleep study off for a couple years before fibro diagnosis. Supposedly I snore like a freight train or the jungle at times Lol. I think I was moderately severe on home test which then required overnight study. The CPAP just seems to cause me more stress and frustration that I don’t feel better. Good sleep is key with fibro and I unfortunately was thinking this was it. I appreciate your feedback.
 

Rhyl

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Joined
Aug 15, 2020
Messages
53
Reason
DX FIBRO
Diagnosis
12/2021
Country
US
State
KY
It has been a month and not telling the difference. My sleeping is the same - sporadic with set bedtime. Energy is still drained and pains the same.
I have apnea and have been on a CPAP (now APAP) for a long time. I don't think it shold be taking two months to notice a difference. If the settings are correct, it should start working pretty quickly. Just as an FYI, pain did not change at ALL with the addition of the machine.
am not the typical person supposedly to have this machine.
Anyone can need a CPAP.

Everyone I know that has gone for a sleep study needs a CPAP. Seems to be a lot of money in it for the medical suppliers.
Well, they typically don't do sleep studies unless there is a pretty strong indication there's a problem, so yes...lots of folks who have studies have CPAPs.
The CPAP just seems to cause me more stress and frustration that I don’t feel better
I would definitely talk to your doctor again. Sometimes the settings need to be tweaked until you notice a difference. I hate sleeping without my machine; after a few adjustments, it really helps me sleep and not be tired in the morning.
 

Con

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Messages
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Reason
DX FIBRO
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I have apnea and have been on a CPAP (now APAP) for a long time. I don't think it shold be taking two months to notice a difference. If the settings are correct, it should start working pretty quickly. Just as an FYI, pain did not change at ALL with the addition of the machine.

Anyone can need a CPAP.


Well, they typically don't do sleep studies unless there is a pretty strong indication there's a problem, so yes...lots of folks who have studies have CPAPs.

I would definitely talk to your doctor again. Sometimes the settings need to be tweaked until you notice a difference. I hate sleeping without my machine; after a few adjustments, it really helps me sleep and not be tired in the morning.
Thank you @Rhyl for sharing. I will check in with my neurologist. I will ask on the setting.
 
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