Denial and frustrated over new fibromyalgia diagnosis

Bhavya

New member
Joined
Jun 5, 2020
Messages
3
Reason
Undiagnosed
Diagnosis
06/2020
Country
US
State
NY
Hi ,
I'm 34 ,young and active Nephrologist , developed wide spread body pains on a pain scale 3/10,pain is floating type ,dull achy it's been 7 days of pain and my Rheumatology colleagues diagnosed me with fibromyalgia ,I have one year baby girl and now scared for my future,my practice as Nephrologist ,what kind of mom I'm going to be for her if I'm in constant conflict with myself about my diagnosis n prognosis,want to ask is fibro a death sentence ,is it progressive ,does this pain worsen ,
I had IBS symptoms on n off very mild form though ....any input on progression is appreciated
 

Dooi

Moderator
Joined
Feb 4, 2013
Messages
149
Reason
DX FIBRO
Diagnosis
06/2012
Country
CA
@Bhavya I know it's difficult but it's definitely not a death sentence.

I know it's hard to see any positives, but getting a diagnosis is a positive first step.

Now that you've had a diagnosis you're able to research and try methods to manage your fibromyalgia. You'll have some bad days, same as anybody else with or without fibromyalgia. You'll still be able to live a long and positive life, it's just perspective. You'll still have good days and will be an amazing Mom. On the bad days, you can still be there for your daughter and, through everything in life that throws us, you'll be able to share your wisdom and strength with your daughter.

Please don't get too down, or too frustrated. If you can work towards a healthier mental outlook, as well as managing diet and exercise I think you'll be able to look back through this difficult time as a growing experience. Not so different than IBS, a lot of it is proper management and managing expectations.

I hope this was helpful. I am sorry for your diagnosis, but if there's one thing I know, taking a negative perspective will only exasperate the situation and your feelings towards yourself.

You are strong. You are kind. You are good.
 
Last edited:

Bhavya

New member
Joined
Jun 5, 2020
Messages
3
Reason
Undiagnosed
Diagnosis
06/2020
Country
US
State
NY
Thanks a ton ...ur reply really lifted my spirits
 

Drummer76

Member
Joined
Apr 15, 2018
Messages
13
Reason
DX FIBRO
Diagnosis
02/2006
Country
US
State
IN
I can't say anything more then what was said above but will agree, your mental health is very important. If you don't hwbe control of it,then it will make things worse.
People hab
very different symptoms and yours could be mild but you'll have your bad days. Just remember that it all passes and look forward to a good day. It's rough but not a death sentence by any means
 

Fatima

Member
Joined
May 31, 2020
Messages
23
Reason
DX FIBRO
Diagnosis
10/2019
Country
CA
State
ON
I have only had Fibro for a year and its been a bad one, but as everyone says here, you have worse days and better days. The trick is to balance your life, give up being superwoman and take self care. Ask for help when you need it. You need to learn to manage your illness and your symptoms. I am using natural approaches to manage my fibro with some success but I feel lucky that I can. I do not have any other conditions. I used to be superwoman, now I am learning to live within my limits.
 

sunkacola

Very helpful member
Joined
Dec 2, 2016
Messages
570
Reason
DX FIBRO
Diagnosis
00/0000
Country
Uni
State
Somewhere
I have only had Fibro for a year and its been a bad one, but as everyone says here, you have worse days and better days. The trick is to balance your life, give up being superwoman and take self care. Ask for help when you need it. You need to learn to manage your illness and your symptoms. I am using natural approaches to manage my fibro with some success but I feel lucky that I can. I do not have any other conditions. I used to be superwoman, now I am learning to live within my limits.
^ What she said. :) I have had Fibro for many years, I think, although only diagnosed officially maybe 4 to 5 years ago...I am not sure exactly.
It has taken some time and experimentation, but I have learned how to manage it so as to have a pretty normal life most of the time. Not what my life was previously, but not that bad. I have gotten the pain down to a manageable level and even more important have learned how to live with it. You will too.
 
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