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sparklebug

New member
Joined
Dec 6, 2015
Messages
5
Reason
DX FIBRO
Diagnosis
06/2012
Country
US
State
MA
I was diagnosed by a pretty crummy rheumatologist who basically went off of some blood tests taken by my GP and then felt my joints (which always hurt) and said that I had Fibro. I had no idea what that was and she didnt tell me. I stopped seeing her because she didnt listen to me and didnt seem to care too much about treating me.

I didnt think much about it because I also have Lupus so I attributed alot of what I was going through to the lupus. Fast forward to today.... My neck muscles are tense (they all have been and because of that I get tension headaches and my spine is starting to curve down.) Im getting pitted nails, thicker nails, no moons on all but 2 and very little color. My feet are freezing all of the time and my arms tingle off and on. Im in pain most days and there are days that I dont want to talk and just want to sleep (but I have 3 kids so thats not happening!). Worst of all is this fog! Im so tired all of the time which, ive gotten kind of used to but, a short trip out to get lunch with a friend and a little conversation and im EXHAUSTED!

Im on Lexapro for the anxiety but nothing for the pain. I live in Massachusetts and they are very strict about pain meds.

So.....What do I do? I was originally diagnosed in Texas and now live in Mass. but, will be moving to Florida in a few months. My current GP doesnt know because I honestly forgot to tell her but, I know that I need to deal with this because I cant keep feeling like this :( What kind of treatments are they using now? It was just cymbalta when I was diagnosed. A family friend said that her sister was given narcotics (not sure if thats true?) I know there is a new drug out there specifically for Fibro but it has alot of bad side effects. Im also open to natural remedies (legal).

Any help you can give would be very appreciated! :)
 

Forgetmenot

Legendary member
Joined
Oct 6, 2014
Messages
1,529
Reason
DX FIBRO
Diagnosis
70/2010
Country
UK
State
Hertfordshire
I do feel for u guys I the USA. It seems so hard for u to get pain meds.
I couldn't move without my tramadol.
I no some states u can use weed. If it wasn't illegal here I'd try it.
 

sparklebug

New member
Joined
Dec 6, 2015
Messages
5
Reason
DX FIBRO
Diagnosis
06/2012
Country
US
State
MA
I know :( When I lived in Texas they would give you oxycodone or vicodin for pretty much everything. Every time I had a child, I got a prescription. I have such pain after dental work, even a cleaning and they would give me a small prescription to help.
Medical weed is legal in Mass but the only dispensary is 2 hours away and the doctors are VERY strict about prescribing it.
Im hoping florida will be more lenient! :)
 

Eyesup

Senior member
Joined
Dec 11, 2015
Messages
376
Reason
DX FIBRO
Diagnosis
12/2015
Country
US
State
FL
Sorry to hear your in a predicament. It sounds like maybe your fibro has slowly progressed. I think you could probably just explain to your gp that you weren't feeling that bad so you weren't concerned (if you have your medical records present them, if not, even a crappy doctors diagnosis is good to have if needed). I live in Texas and I assure you pain meds are not easy to acquire, new federal laws have changed that. Over the counter (Advil, Tylenol exc.$ don't seam to be effective for fibro. For some quick relief you could try capsaicin (over counter drug store) use sparingly, wash your hands off real well. This stuff can burn (chilli pepper). The burn shouldn't last more then a minute, but be ready just in case. hope you get some relief fast.
Gentle hug
 
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