Difficult to diagnose Fibromyalgia, but what about the Covid Post-Vaccination Syndrome?

mbanker

New member
Joined
Dec 28, 2024
Messages
4
Reason
DX FIBRO
Diagnosis
12/2024
Hello everyone,

Like many here, I've spend a lot of time trying to figure out what my issues really are. I'm a 58 year old male who is very active and fit, I've never had any medical issues up until this. My symptoms started in the spring of 2021, very back pain in the neck and shoulders and spreading up to the head. Eventually it turned into dizziness or lightheadedness, tinnitus, numb and tingling fingers. Now it's progressed to numbness/tingling/burning in the lower extremities; from the knees down and elbows down, primarily, both sides. I have very little energy, the fatigue is extreme, even when I haven't done anything physical. Muscle aches and joint pain which is seemingly random. The headaches never stop, all the symptoms have varied in intensity, but never go away.

First I thought it was lyme, since I'm outdoors quite a bit and have had ticks on me, but that was eventually ruled out through multiple types of lyme tests. I saw two neurologists, had a cervical spine MRI and a brain MRI. I saw an ENT, had a hearing test and a vestibular test. I saw an orthopedic spine specialist and a spine surgeon. I saw a lyme literate medical doctor for the past year and was treating it heavily with antibiotics and other things but eventually that was proven to be a dead end.

I saw a rheumatologist recently who looked over all the data and said "it's probably fibromyalgia." But with no definitive test, who really knows for sure? They ran a ANA MULTIPLEX W/REFLEX 11 AB CASCADE test which came back negative, so no autoimmune disease it seems. In fact, I've had no less than fifteen blood tests in the past year for different things. I had EMG tests done on both arms and legs which showed no nerve damage, even though the tingling/burning/numbness pain in my lower legs in particular can be quite severe, and never goes away. The symptoms all get worse at the same time, to the point when its really bad, I have that numbness/burning/tingling sensation almost full body, I can even feel it in my chest. Obviously its very difficult to sleep.

All these various results didn't show anything known that could be responsible, outside of this recent fibromyalgia lean. No brain tumor, no compressed vertebrae, no hearing issues or vestibular issues. The symptoms I have don't present for a neurological or nerve issue due to a structural condition. I also had a full cardio workup, including an EKG and a cardiac stress test, no issues.

What have I tried? You name it. Besides close to ten different antibiotics, a slew of pain killers, gabapentin, acupuncture, acupressure, red light therapy, compression therapy, cryotherapy, a slew of natural lyme tinctures, etc. Sometimes I feel like something is working, but it's short lived, the symptoms come back and knock me down. I've been to the urgent care twice, the ER once. I've had numerous occasions where I felt like I was going to die, I'm sure people here can relate.

But I saw a paper out of Yale a few weeks ago entitled "Immunological and Antigenic Signatures Associated with Chronic Illnesses after COVID-19 Vaccination". It's being referred to as PVS, post vaccination syndrome. This basically confirmed my suspicions, that a segment of the population are now suffering ill effects of the covid vaccines themselves. I had the Pfizer vaccine in May of 2021, two doses, and then a booster. I didn't feel like I needed it, but my job basically forced me, and well, you were considered a pariah if you didn't get it. But the study shows that people are now exhibiting these sort of same symptoms due to the vaccine.

Of course there is no protocol for this yet, it's too early. But I'm wondering if there are others here thinking the same thing. What do I have exactly? I got the feeling that the rheumatologist saw that everything else that they normally consider was checked off, so the answer is fibromyalgia, just because there are no other options left. But they aren't even considering PVS. There are various blood tests available to try and verify this, so I'm pursuing that. And I did test positive for Epstein Barr early on which is also noted in the study as a common marker for PVS.

Anyone in the same boat?
 
I could be reading my own story. Everything you have spoken about sounds exactly like me. I also had two shots and then a booster. I was in healthcare and threatened with job loss if I did not comply. I’ve discussed the possibility of vax or covid injury without any real interest from my doctors. I was very healthy and active up until this time. I now need a cane to walk. My balance is very bad as is the overall body pain that never eases. Sleeping is a nightmare. My life is nothing like it was and I am a shell of the person I used to be. There has to be more of us out there. Blessings to you.
 
Sorry to hear, but yes, I believe millions are actually impacted. Even if its a small percentage of those who received the vaccine, it's still quite a large number, probably millions. If you google the paper that I referenced you can read about the study, I don't think this forum allows the posting of links. Unfortunately at this point its too early for there to be any official protocol but hopefully one day.
 
No way… it couldn’t be the glorious vax lol.. trust the $ciemce 💉 🐑:…

MYALGIA is a ‘side effect’ of all vaccines but no one reads the inserts in the package. Duh.

Look up au.jabinjuries.global dotcom.. weeks worth of reading about people with exactly the same symptoms as yourselves. Sorry I can’t post a weblink here as the forum mods might faint.

None of us unvaccinated purebloods regret not getting it! NONE..

Stay safe in clownworld! 🤡
 
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Amen brother! Pure blood here too! Yet, the shot is still being advertised and post vaccine injuries hid! My brother in law is in constant pain and can barely get around and I asked him if he ever thought those covid shots were the factor. He gets them every 6 months through the VA...
 
Hi pureblood sister sorry to hear about your brother. They simply have shut off the truth for tv fables instead, 2 Timothy 4:4. A family member here is getting her 8th shot this week. It’s hard to believe. She’s a full blown vaxtard now. My mechanic had a heart attack after his first one around 4 years ago and he’s now just had a stroke 5 days ago and has to retire at the expense of the rest of us. My wife had chest pains after her first injection and the ‘drs’ said no connection it was ‘anxiety’ pfft. Client of mine is a funeral director she said in 2023’ that business is up 50% since the clotshot. Nothing to see here. Move on. Crickets.

Revelation 6:8 - "And I looked, and behold a pale horse: and his name that sat on him was Death, and Hell followed with him. And power was given unto them over the fourth part of the earth, to kill with sword, and with hunger, and with death, and with the beasts of the earth."

The “fourth part of the earth” is the western countries.. the so called commonwealth.

I encourage others here to ask questions or challenge this..

Crickets 🦗
 
Whilst I respect everyones views and their actual experiences of vaccinations, and i really believe everyone should have the choice to be vaccinated or not. Thats such an important right - to choose.

However some of us need to weigh up the benefits of vaccinations in their ability to protect us vs the potential side effects. I have a severely weakened immune system. My body cannot fight off some infections or illnesses and so I choose to be vaccinated for many potential viruses etc. Thats my choice, and I research as best I can prior to any vaccination or medication.

The UK is a small island and best figures I can find is some 250,000 died from the covid virus. There are certainly cases where the vaccination has caused long term effects. As can any medication.

Its a choice we have to make ourselves as individuals.
 
I agree with @SBee. Like many other things, whether or not to get any given vaccination is a very personal choice, and no one should be made to feel silly or wrong for choosing either to get one or not to get one. I make that choice very individually, myself, and some vaccinations I have gotten and others I do not get. Vaccinations are like everything else....they are not all of them All Good nor are they All Bad. And what it is for any individual will vary greatly.

On this forum we respect each other's choices and do not try to tell each other what to do, or that the choices we make are wrong.
 
It wasn't much of a personal choice when your job basically forces you to get it, but this post wasn't meant to get into that aspect of it. We can't turn back time.

I was more interested in other people who are experiencing the same symptoms and are sort of caught between multiple ambiguous or imprecise diagnoses, that's all. I've burned multiple years on what's basically a wild goose chase.
 
Yes. Let us agree we will not be discussing the usefulness or lack thereof of vaccines, or any political or religious aspects of that debate, and instead we will keep this thread on @mbanker 's original topic.
 
It wasn't much of a personal choice when your job basically forces you to get it, but this post wasn't meant to get into that aspect of it. We can't turn back time.

I was more interested in other people who are experiencing the same symptoms and are sort of caught between multiple ambiguous or imprecise diagnoses, that's all. I've burned multiple years on what's basically a wild goose chase.
One of my daughters is worried about me at the moment, she sent me a link last week and said it was exactly my symptoms. ( never struggled so bad with pain like this before) I only had the covid vaccination for my mom, I wanted to stay safe for her. I have had 5 covid jabs.
My gp keeps reminding me I am due for another. I will not have anymore till more till my health is better,
 
One of my daughters is worried about me at the moment, she sent me a link last week and said it was exactly my symptoms. ( never struggled so bad with pain like this before) I only had the covid vaccination for my mom, I wanted to stay safe for her. I have had 5 covid jabs.
My gp keeps reminding me I am due for another. I will not have anymore till more till my health is better,

Sorry to hear. Do you have the same symptoms as I described?
 
Sorry to hear. Do you have the same symptoms as I described?
Yes EVERYTHING you said, the pain/burning/ tingling in my hands and feet though can go up to my knees and elbows. I have way too many spinal problems and my medical team seem to always blame my spine. But I know it’s more than that and I really am struggling that’s why I been off the forum again. I use to always have a heat pack on me somewhere but now can’t stand it .
 
@Harpy I just want to say I am so sorry that you are having such a hard time these days. I am going through a rough time myself and I really wish there were something that would help all of us who are struggling!
 
@Harpy I just want to say I am so sorry that you are having such a hard time these days. I am going through a rough time myself and I really wish there were something that would help all of us who are struggling!
Thanks sunkacola, normally no matter how bad the pain gets I keep moving as it’s when I stops it gets unbearable. The last few weeks I pretty much been a lounge lizard.one friend told me to get meds for depression, I told her I am not depressed I am in agony all the time. I said to her, remember when you hurt your knee? She said yes, I said well I am like that all the time, you have full night sleeps, I am woken in pain, you got better I won’t. Think the penny dropped for her.
Sorry to hear you’re doing just as bad as myself. There has to be something out there that can help us fibro’s.
I am willing to betting all my cards on this PEA.
 
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