Dismissed Again...

PandaMarie88

New member
Joined
Nov 13, 2020
Messages
1
Reason
DX FIBRO
Diagnosis
01/2012
Country
US
State
TX
So I just recently moved to a different city and I needed to find a new PCP. Unfortunately, do to crappy circumstances, I haven't had a doctor for months now and I haven't had any kind of medication other than over the counter crap which doesn't really help with anything other the severe osteoarthritis in my knee and ankle. So I finally got an appointment and I was finally feeling a little optimistic that I would finally be getting some help again. As soon as I told her about being diagnosed with fibromyalgia, She went into a whole shpeal about now there's been new methods lately for treating fibro. She then proceeds to tell me about how depression can create physical symptoms and it's crazy what the brain can do. She didn't even do any kind of blood work or any other kind of tests. All she did was ask me to fill out a few mood and mental questionnaires and write me a script for Cymbalta and give me a list of psychiatrists to possibly visit. She didn't even wanna schedule me for a follow-up. It's just so beyond frustrating having to find a new doctor only to be dismissed as crazy because you hurt constantly. I was so pissed off I just sat in the car and screamed afterwards. I don't really have anyone who understands how this feels that I can talk to and it's just really starting to get bad again.
 

sunkacola

Very helpful member
Joined
Dec 2, 2016
Messages
886
Reason
DX FIBRO
Diagnosis
00/0000
Country
Uni
State
Somewhere
Well, we here understand. So at least there's that.
I do sympathize with you completely. It's beyond infuriating to be told that "it's all in your head". I don't know what is available where you live but you could do some research and see if there is anyone in your area who treats fibromyalgia. Even call some doctors and ask them, so you don't go through this over and over. And/or you could possibly visit a pain specialist or clinic? They would be more informed than this doctor you saw.

It is very important to find someone who is willing to do the tests that are appropriate according to your symptoms in order to rule out the other things that could be causing them. If a doctor is not even willing to do those tests, they are of no use to you at all. If you have already received a formal diagnosis of FM, then try going straight to a pain clinic if there's one in your area. Might cost you, but at least you'd be heard.

In the meantime, see if any of the suggestions in the post that is a sticky at the top of the General forum help you. The post is called "Advice for managing Fibromyalgia" and it has a lot of thing you can try to see if they help. Most people find that at least some of it helps at least somewhat, so it's worth trying. Let us know what you are trying and how it is going for you!

And in the meantime, feel free to come here to vent and ask questions, or anything else you need to do. We are here to help.
 

JayCS

Senior member
Joined
Sep 5, 2020
Messages
209
Reason
DX FIBRO
Diagnosis
02/2020
Country
GE
I'd second shopping around docs, several kinds, too. But one of my psychiatrists is great: He knows and defends me that it's not in my head. I'm also sure after my first visit he did his homework and was better on fibro after. He's helping me think about symptoms, no meds, and how to manage rehab. Psychologists didn't help me, because I've done a lot of that anyway, but if you haven't I'd always consider counselling too, which could help you implement sunkacola's advice-suggestions. Not because it's in your head, but because your head is a valuable resource to find solutions.
 

BML

New member
Joined
Nov 9, 2020
Messages
4
Reason
DX FIBRO
Diagnosis
04/2013
Country
CA
I have tried every antidepressant for fibromyalgia as they say this type of medication can help with pain etc. With my experience any antidepressant is garbage. I swear every doctor prescribed that to everyone. I try eating healthy, taking vitamins and daily stretching. The only medication that worked for me were opioids for when my pain got unbearable. The doctor ended up taking it away as he said it’s not a long term medication. Now when I get a bad flare I suffer and have little to no pain control.
 

Drummer76

Active member
Joined
Apr 15, 2018
Messages
35
Reason
DX FIBRO
Diagnosis
02/2006
Country
US
State
IN
I went to several doctors and found that an LPN will listen more then an MD will,just my experience.
BML have to agree,antidepressants do nothing but screw your head up. Been there already
 

TJB

Member
Joined
Aug 17, 2020
Messages
21
Reason
DX FIBRO
Diagnosis
06/2011
Country
UK
State
CT
Hey, Hope your day isn’t too bad (fibromyalgia wise).
Unfortunately this attitude of Gp’s and Consultants constantly comes up where they only want you to be directed to mental health.
Im diagnosed both CFS/ME & FM, and there’s cross over symptoms with that.
At the beginning a Neurologist went full on ‘mental health’, didn’t even do tests he intended to (bank holiday hospital admittance...I say no more lol).
I found this v upsetting which looking back worsened my conditions. I resisted the MH referral.
I was lucky at that time I had an excellent GP, knew me well, and was adamant that was not the correct route. A GP your unknown to can be unhelpful sometimes, I found that out myself, 8 years after diagnosis after moving area.
Some may find MH meetings helpful, personally not for me. They can’t fix the problem, but having someone to talk to can relieve any stress or anxiety, if it’s even there.
I had to find my own way, learning to pace myself, accepting help, adjusted things in my life I now struggle with, automatic car, small food cartons (large ones too heavy)etc. accepting diagnosis alone was a start for me! Just tools to help me, not remove my conditions.
Did the GP tell you exactly what this new way of treating FM is? Just MH referral is not acceptable.
Have a look on the NICE guidelines etc...see what it says there.
You could see another GP, or speak to mental health and explain all, be honest with them.
Dr’s are still trained that FM CFS/ME is mental health! I say no more. SomeDr’s are far more supportive than others.
x
 

Drummer76

Active member
Joined
Apr 15, 2018
Messages
35
Reason
DX FIBRO
Diagnosis
02/2006
Country
US
State
IN
Hey, Hope your day isn’t too bad (fibromyalgia wise).
Unfortunately this attitude of Gp’s and Consultants constantly comes up where they only want you to be directed to mental health.
Im diagnosed both CFS/ME & FM, and there’s cross over symptoms with that.
At the beginning a Neurologist went full on ‘mental health’, didn’t even do tests he intended to (bank holiday hospital admittance...I say no more lol).
I found this v upsetting which looking back worsened my conditions. I resisted the MH referral.
I was lucky at that time I had an excellent GP, knew me well, and was adamant that was not the correct route. A GP your unknown to can be unhelpful sometimes, I found that out myself, 8 years after diagnosis after moving area.
Some may find MH meetings helpful, personally not for me. They can’t fix the problem, but having someone to talk to can relieve any stress or anxiety, if it’s even there.
I had to find my own way, learning to pace myself, accepting help, adjusted things in my life I now struggle with, automatic car, small food cartons (large ones too heavy)etc. accepting diagnosis alone was a start for me! Just tools to help me, not remove my conditions.
Did the GP tell you exactly what this new way of treating FM is? Just MH referral is not acceptable.
Have a look on the NICE guidelines etc...see what it says there.
You could see another GP, or speak to mental health and explain all, be honest with them.
Dr’s are still trained that FM CFS/ME is mental health! I say no more. SomeDr’s are far more supportive than others.
x
The Dr I see now doesn't view fm as a mental thing and hasn't referred me to any mental thing. She did find a good pain management dr who knows fm well and again no mental thing brought up.
I'm sure it helps some but not for me either.
 
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