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buddha1

New member
Joined
May 25, 2016
Messages
2
Reason
DX FIBRO
Diagnosis
00/0000
Country
uk
State
United Kingdom
Hi i have not been diagnosed with fibro myalgia however I have been diagnosed with chronic pain iam under the care of pain management i have also got (IBD )inflammatory bowel disease along with pains throughout my body I have degenerative bone in my spine i have burning sensation which comes and goes i have had all blood works done which have come back fine latest bloods doing which got results today where for vitamin D and calcium which are normal pain management nurse said one week it's anxiety then later said it's all in the mind also last year been diagnosed with PTSD any help or advice would be appreciated. Thanks
 

Trellum

Legendary member
Joined
Jul 17, 2013
Messages
1,788
Reason
DX FIBRO
Diagnosis
04/2011
Country
NL
State
NL
Hi there! Welcome to the forum! So sorry to hear you are going through this! I hope you can get a fibro diagnosis soon enough, but let me tell you that I have heard there is a link between IBS and Fibro. It seems a lot fibro sufferers also suffer from IBS, I am one of them. I also suffer from IBD, but I haven't heard about any link between IBD and Fibro. Both can coexist though. I recommend you to look for a good rheumatolgist, maybe a neurologist too.

As for the burning... where do you experience said sensations? I ask because there is another conditions that is often seen in fibro suffers, it affects mostly the scalp and it feels like a burning sensation in that area. It can be treated.
 

buddha1

New member
Joined
May 25, 2016
Messages
2
Reason
DX FIBRO
Diagnosis
00/0000
Country
uk
State
United Kingdom
Hi thanks for the reply the burning sensation i get is inside my elbows and the top of my chest and also in between my shoulder blades iam a 46 year old male and had this pain for the past 2 years now seen a neurologist few months ago i have restless legs and my body goes into twitches and spasms i have gp appointment next Thursday i think he is referring me to a rheumatologist
 

bettyboop

New member
Joined
Jun 18, 2016
Messages
1
Reason
Diagnosis
00/0000
Country
USA
State
NJ
Hi all I am also new at this. I am awaiting a diagnoses. I feel burning sensations in my arms( biceps area), shoulders, and legs. I have an appointment with neuro in July and a rheumatologist after that. I am so tired of feeling this way. I hope you get relief.
 

marl65

New member
Joined
Jun 19, 2016
Messages
1
Reason
Diagnosis
00/0000
Country
Can
State
NB
hi, am new to this, so please bear with me...I have all the problems you cited, but my pain management specialist does not believe in fibro.....I see him for spinal injections for degenerative disc disease , arthritic facet joints.......although this helps my back, I am so tired of being in chronic pain throughout my body..I sleep a lot plus need naps in the afternoon.Some days it is just too painful to walk, my neck and shoulders are also painful and I get severe headaches now as well...I need help out of this misery so I can enjoy my grandchildren......if anyone knows the name of the fibro specialist in Saint John Nb, I'd really appreciate it.....HELP
 

kipjmejia

New member
Joined
Aug 2, 2016
Messages
2
Reason
Diagnosis
00/0000
Country
USA
State
Washington
Fibromyalgia symptoms may intensify depending on the time of day -- morning, late afternoon, and evening tend to be the worst times. Symptoms may also get worse with fatigue, tension, inactivity, changes in the weather, cold or drafty conditions, overexertion, hormonal fluctuations (such as just before your period or during menopause), stress, depression, or other emotional factors.
 

glinda2127

New member
Joined
Aug 16, 2016
Messages
4
Reason
Undiagnosed
Diagnosis
06/2014
Country
US
State
WI
I just joined today so haven't read alot of posts yet; but is there anyone who has the nerve pain ONLY in the legs? This all started for me years with a neck and back injury, so they did all these injections and radiofrequency and it wasn't until after all that that I had the nerve pain in my legs and the drs. say fibro. From everything I've read it's described as all over pain so I'm still a bit confused. I still have the pain in my neck and back but it's not the same as in my legs. For awhile I though the injections caused my leg pain.
 

moe1959

Very helpful member
Joined
Sep 13, 2014
Messages
708
Reason
Undiagnosed
Diagnosis
09/2014
Country
US
State
wa.
Yeah! I tried that, maybe it is all in my head. As I was trying to walk from the bathroom to my kitchen, and both feet were o. Fire, I repeated, it's all I. My head, it's all in my head . Then abruptly sat down, it was that,or Fall down.
Sorry sweetie, it's all in your head is short term for: I really don't know what to do for you, so I'll throw out that your imagining things, that way, I don't have to Work on you.
 

JobJobe33

Member
Joined
Aug 18, 2016
Messages
16
Reason
DX FIBRO
Diagnosis
04/2013
Country
US
State
Iowa
Don't worry about the "all over" thing. My fibro is only in the lower body.
 
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