Do you worry about the side affects of medications?

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Why do all the presriptions available to fibro patients have such awful long and short term side affects? I'm scared to take anything
 

Kanika J

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Hey n.f.r

The day my doc gave me prescriptions for fibro -- i went through the list and immediately deduced I wasn't takin none of it --- and I didn't for a very long time --- but in the middle of a horrific episode that actually landed me in the ER -- i was coaxed into taking the medication and it actually worked -- but what's important to remember is that fibro last longer than the medication --- and so ya have to incorporate a regime of exercise --- healthy but good eating habits -- restful sleep is essential -- when I incorporated all of these components with the medication from 2009-2012 i had minimal to no fibro episodes --- ... Oh and when starting new medication and even increasing new medication sometimes its best to pick days when ur sch is free no wrk or plans --- ur gonna sleep alot ---
 

diamond

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Hi NFR...like you i hate taking pain meds as i seem to be overly sensitive to side affects and only when my fibro got so bad i was yelping in pain did i give in to cocodamol. Sometimes it helps take the edge of so i understand your concerns as i don't feel like myself on it.
 
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darkchocolate

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I don't like taking any prescription medications, but I know we have to sometimes. I would rather do things through diet and lifestyle if at all possible.

I don't have a diagnosis yet, but I do have an appointment tomorrow with a rheumatologist after many different doctors, blood test, MRI's and a nerve study. The latest specialist is a neurologist and she is the first one that has mentioned fibromyalgia. My referral states, possible arthritis or fibromyalgia.

I was put on Gabapentin August 31 and switched to Lyrica October 6, all of this year. Depending on what the rheumatologist tells me, I want to take the minimal dose possible. My Lyrica was increased last week and I don't function as well because of the drowsiness and dizziness.

The long term side effects really scare me.

Everyone's definition of a healthy diet can vary. I can only do what works for me and what I feel is right for my body. I gave up grains about 18 months ago, I avoid sugar, processed foods and I really don't care at all for fast food. This summer I started eating fermented foods because I wanted to get my probiotics from a food source versus a supplement. I really enjoy making and drinking milk kefir, I also ferment a variety of vegetables. I gave up artificial sweeteners in February after the chiropractor told me they are neurotoxins and I was willing to do whatever to feel better.

I wish everyone the best in whichever way they choose to get through each day.
 
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Kanika J

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hey dc

I soo hope ur appt went went --- and because i understand intimately that "well" changes meaning depending on our mental and physical state --- so hopefully you were given the medical attention that allows you to begin the process of creating a "comfort zone" --- although I am a fan of the medication --- its a bittersweet relief because overtime you have to increase the dosage or change prescriptions -- then u have the side effects of the medication --- which can make fibro seem harder to deal with on a daily basis --- your change in dietary sounds great -- if your able to add a minimal exercise routine -- i'm trying yoga --- it will be hard at first but it really does work -- I've speculated over the years as to why the exercise works but i gave up on asking and jst started walking slowly but daily ...
 

darkchocolate

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Kanika J, I didn't go to the rheumatologist because I found out some very disturbing things (to me) about him. He can no longer practice in one state, has been arrested in my state (temper related issue), fired from a hospital. God put someone in my path who of these circumstances and she would not see him as a doctor. I knew then I needed to cancel that appointment. I now have an appointment Nov. 19th. I also have an appointment with a rheumatologist Feb. 1, 2016 at a teaching hospital. I really wanted to see this doctor, but that is a long to time wait. So I will keep it. The only down side is neither doctor treats fibromyalgia. I am going to see if I do have fibromyalgia, or could it be something else.

I have started doing stretching exercises and that seems to help. I am also keeping a journal.
 

moe1959

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What's cocoadamol?
 

diamond

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HI Moe its paracetamol and codeine ..if you google it it will have a different name in the US. All our drugs seem to have a different name.
 

Forgetmenot

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I must be one of the few who don't worry about it. ALL meds have side affects many are the same. Remember drug company's have to by law state any side affect no matter how rare. If they didn't and someone got ill they would be sued .
While we have to live our life's in pain why not have something that helps u cope.now I only take four a day . That's not a lot .i always think if I take the bare min then when I have a fare I can take more without even going to the maximum does.
My dr has told me every year that goes by you will feel worse,so I said well I don't like pills . He looked at me and said well if u wanna walk around in pain all day go ahead but that's stupid if u ask me.my dr is very forward lol.
Anyway after awhile I though his right I have a family to look after.so I take four a day with some paracetamol on bad days.
In fact the dr told me once .i quote Mrs smith if u knew what was in paracetamol u would never take them every again.and tramadol is less harmful then the paracetamol u can get OTC.
 
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