Miss Magpie
New member
- Joined
- Nov 6, 2014
- Messages
- 3
- Reason
- Undiagnosed
- Diagnosis
- 00/0000
- Country
- AU
- State
- South Australia
I have been suffering from chronic tiredness, muscle aches, brain fog and recently, due to the ongoing nature of my health, depression.
I had Glandular fever about 5 years ago. which is the closest understanding of what I am feeling now however my 6 months of glandular fever is nothing compared to how i feel currently.
it started about 3 months ago, I had recently moved in with my partner and my dog had died and i had started a new job which i was thoroughly enjoying.
It started with chronic migraines which where debilitating and left me in bed for days exhausted from i am guessing the pain. My first doctor dismissed everything hinting I am looking for a handout from the government as all the tests she ran came back with nothing abnormal (she aso didnt believe CFS or FM existed). My second doctor took a lot more time and referred me to see a neurologist (which i can't get into for another 8 months). However all the tests she ran also came back with nothing abnormal. I had low vitamin d (which i take tablets for) and low protein (which i am treating with eating a lot of tofu, fish, eggs, and even protein powder). However the latest blood tests that came back showed they were all restored to normal levels. each day I have been getting worse, the only good thing to come out of the vitamin d tablets and protein intake has been my headaches are not every day and are not as strong.
However now the headaches (now diagnosed as chronic migraines) have lessened other underlying symptoms have surfaced which i believe were there since the migraines started but were less noticable with such chronic pain. Sadly I had to leave my job because i found I would wake up each morning feeling mentally and physically drained, like I had been hit by a bus. Even the most minute tasks seemed impossible.
my doctor has suggested that its my spiritual side not getting what it wants but how can something I am not even sure I believe in be affecting my health so dramatically?
A normal day now consists of me getting up (if i have the energy) sitting outside and watching mindnumbing shows until my partner comes home from work. He then makes dinner for us (i dont have the energy to make food) and then we go to bed where I cant sleep although I am exhausted until the early hours of the morning. Then repeat.
At the beginning I tried doing housework, gardening, cleaning the cars. But found those tasks to be so draining I felt like I was going to fall down.
My symptoms include
Headaches (recently milder enough so that i can choose not to take painkillers)
Exhaustion whether I am lying in bed or trying to do the dishes.
foggy brain and terrible memory.
body aches especially in my legs, shoulders, neck and back.
random stabbing pain in my head like a pickaxe.
When I try and have a normal day such as studying( i am in my final semester at University after 5 years of studying) I am wiped out by mid afternoon and the following week am in recovery. I was accepting that we would find what was wrong so I could begin treatment but I am losing hope. For the first time I am feeling so depressed, helpless and frustrated. Yesterday saw me sobbing for hours, too exhausted to move.
and today I woke up sobbing which was heartbreaking for my partner because he had to leave me to go to work so he could support us.
I am now so terrified that noone with diagnose me and that this will be my existence for the rest of my life.
I am young, I have dreams, I have an amazing family and partner. I have passion. But I am losing this passion, I am scared to go to someone else for help incase they accuse me of being a doll bludger or tell me my pain is psychosomatic.
So recently my partner and I have been looking for answers on the net and he thinks its FM and CFS. But as you all know doctors are so unwilling to diagnose patients with these illnesses. I have now hit a stage where I dont have the energy and my legs hurt too much for me to see a gp because driving is so exhausting.
I just want to be well and live a normal healthy life.
Yesterday I missed the last class of my degree which was devastating because I have spent 5 years studying and to miss that milestone is heartbreaking for me.
I live in South Australia where their arent many specialists and the doctors are mostly very old fashioned so I am struggling to get help.
I want to know if this is normal? I have a friend who has been diagnosed with FM yet she lives a pretty normal life, working 5 days a week etc... I know my health would not allow me to work currently so was wondering is there varying degrees of FM and CFS? or is every case treatable so that I could potentially live a normal life again?
I am at my breaking point.
I had Glandular fever about 5 years ago. which is the closest understanding of what I am feeling now however my 6 months of glandular fever is nothing compared to how i feel currently.
it started about 3 months ago, I had recently moved in with my partner and my dog had died and i had started a new job which i was thoroughly enjoying.
It started with chronic migraines which where debilitating and left me in bed for days exhausted from i am guessing the pain. My first doctor dismissed everything hinting I am looking for a handout from the government as all the tests she ran came back with nothing abnormal (she aso didnt believe CFS or FM existed). My second doctor took a lot more time and referred me to see a neurologist (which i can't get into for another 8 months). However all the tests she ran also came back with nothing abnormal. I had low vitamin d (which i take tablets for) and low protein (which i am treating with eating a lot of tofu, fish, eggs, and even protein powder). However the latest blood tests that came back showed they were all restored to normal levels. each day I have been getting worse, the only good thing to come out of the vitamin d tablets and protein intake has been my headaches are not every day and are not as strong.
However now the headaches (now diagnosed as chronic migraines) have lessened other underlying symptoms have surfaced which i believe were there since the migraines started but were less noticable with such chronic pain. Sadly I had to leave my job because i found I would wake up each morning feeling mentally and physically drained, like I had been hit by a bus. Even the most minute tasks seemed impossible.
my doctor has suggested that its my spiritual side not getting what it wants but how can something I am not even sure I believe in be affecting my health so dramatically?
A normal day now consists of me getting up (if i have the energy) sitting outside and watching mindnumbing shows until my partner comes home from work. He then makes dinner for us (i dont have the energy to make food) and then we go to bed where I cant sleep although I am exhausted until the early hours of the morning. Then repeat.
At the beginning I tried doing housework, gardening, cleaning the cars. But found those tasks to be so draining I felt like I was going to fall down.
My symptoms include
Headaches (recently milder enough so that i can choose not to take painkillers)
Exhaustion whether I am lying in bed or trying to do the dishes.
foggy brain and terrible memory.
body aches especially in my legs, shoulders, neck and back.
random stabbing pain in my head like a pickaxe.
When I try and have a normal day such as studying( i am in my final semester at University after 5 years of studying) I am wiped out by mid afternoon and the following week am in recovery. I was accepting that we would find what was wrong so I could begin treatment but I am losing hope. For the first time I am feeling so depressed, helpless and frustrated. Yesterday saw me sobbing for hours, too exhausted to move.
and today I woke up sobbing which was heartbreaking for my partner because he had to leave me to go to work so he could support us.
I am now so terrified that noone with diagnose me and that this will be my existence for the rest of my life.
I am young, I have dreams, I have an amazing family and partner. I have passion. But I am losing this passion, I am scared to go to someone else for help incase they accuse me of being a doll bludger or tell me my pain is psychosomatic.
So recently my partner and I have been looking for answers on the net and he thinks its FM and CFS. But as you all know doctors are so unwilling to diagnose patients with these illnesses. I have now hit a stage where I dont have the energy and my legs hurt too much for me to see a gp because driving is so exhausting.
I just want to be well and live a normal healthy life.
Yesterday I missed the last class of my degree which was devastating because I have spent 5 years studying and to miss that milestone is heartbreaking for me.
I live in South Australia where their arent many specialists and the doctors are mostly very old fashioned so I am struggling to get help.
I want to know if this is normal? I have a friend who has been diagnosed with FM yet she lives a pretty normal life, working 5 days a week etc... I know my health would not allow me to work currently so was wondering is there varying degrees of FM and CFS? or is every case treatable so that I could potentially live a normal life again?
I am at my breaking point.