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Indianagal

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I have been feeling so very lousy for a few weeks now. I have fibromyalgia plus cervical disc disease. I was taking 200mg Lyrica and 120mg of Cymbalta each day. My fibro doctor and I have fallen out and he will not give me a new script for Lyrica, had to stop taking it about a month ago. Have had the flu for the last couple of weeks which didn't help pain wise. Going to see another doctor today and ask for a new script for the Lyrica.
I did finally get approved for Social Security disability which is really good news. The weather here in Indiana just sucks big time. So very cold and been hit with one snowstorm after another. Been more depressed than usual and not sure why I am feeling so very anxious. Going to talk to the doctor today about this also. Been sleeping so much it is almost like I am hibernating. Can't get interested in doing anything or going anywhere. Even my favorite hobby....knitting just can't seem to enjoy it the past few weeks. I just sit on the sofa and look at my knitting and just can't be bothered. My appetite has decreased, which is good as I have weight to lose. Forcing myself to eat is terrible as I really don't want to eat, don't feel hungry...but I have been eating as I know I have to.
Can anyone relate to any of this? I am really hoping when I see the doctor today they can help me.
 

mariposa

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I hope that your appointment today will end up giving you some relief! What is the reason that your doctor didn't want to give you more Lyrica? I'm asking because if the reason is in your records, the new doctor will know about it and if he/she agrees with the reasons, there's a chance they won't want to give it either. Maybe it was harming you in some way?

I'm so sorry you're dealing with being more depressed and the other issues at the same time. :-( Please let us know how the appointment went for you today!
 

Justamom

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Jan 19, 2014
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01/2008
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I hope your doctor appointment went good. I just want you to know I feel awful too. I'm on cymbalta 60 mg and need to go to my dr too for increase in it and something for the pain. I was taking gabapentin but it made me feel unmotivated and weird. I work and do really good until I get home I don't know if it's because I slow down at home or if I mentally have to put on a show and never let anyone see what I really go through.
Anyways, I hope you get to feeling better.
 

Dopey

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Jan 19, 2014
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Undiagnosed
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12/2013
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Minnesota
I hope your appointment went well. Depression is very hard to deal with and keep under control. One thing that helps is sunlight, which is hard this time of year but there special lamps that you can get or even try tanning because its the light. Most people that have the lamp it works for them. I am looking into one for myself.
 

Indianagal

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I went and saw a doctor yesterday and she did give me a new script for Lyrica. Unfortunately when I went to get it filled the pharmacy was all out of it and so have to go back today to get it. The doctor thinks the way I have been feeling may be associated with me stopping the Lyrica about a month ago. If I don't start feeling better after starting to take it again I will go back to see her. She said I could take Wellbutrin in addition to the cymbalta I take but will wait on that to see if there is any improvement in my mood after I start taking the Lyrica again.
My story is quite complicated, the neurologist I had been seeing has all along felt my fibromyalgia was work-related. Each time I went to see him he would make a comment to that effect. I ended up applying for worker's comp disability, my doctor wrote an excellent letter to support my case. Because I am a former federal employee I am having to deal with the Department of Labor. They sent me for 2 second opinions and then rejected my claim. When I saw my neurologist last summer and took the letter from the DOL, because he would ask me about the case each time I saw him. He said he couldn't believe I was having such a hard time with the DOL and that I should get an attorney. He said he would help in any way he could. I did get an attorney who filed an appeal on my behalf with this case. The attorney did want the doctor to help out, so when I saw the neurologist next I talked to him about it...and he all of a sudden has changed his mind about helping me. He said I had asked alot of him and he had been very cooperative but stated in no uncertain terms he is not willing to help out any longer. He also said he felt I had improved greatly...which I haven't. Because of finances about a year ago I sought out a mail order company to get my prescription drugs from. Based on my income I was paying $55 a month for both my Lyrica and Cymbalta. When I needed a new script in November for my Lyrica the mail order company contacted the neurologist. The neurologist did send this company a new script but it lacked the information that was needed to process it. The mail order company tried to get what they needed from the doctor in order to process the script but the doctor's office would not cooperate. I talked to the doctor's nurse a few times and all they needed to do was send a new script to the mail order company which they would not do.
So that is why I have gone to another doctor. And now recently I got approved for Social Security disability so need to get the Medicare prescription drug coverage. Social Security sent me a Medicare card which I got last week. As far as my worker's comp case after the appeal was filed my case has been reopened and the DOL sent me for a 3rd second opinion which was last week.
I want to find a rheumatologist in my area to treat me and will be making an appointment soon with one. I ended up taking a voluntary early retirement from the postal service about a year ago and also am trying to get my regular retirement changed to disability retirement. The postal service terminated my health insurance before I retired last year and once approved for the disability retirement my health insurance will be reinstated. So I should be able to see a specialist then without worrying about paying for it.

Sorry this is a long reply, probably sounds confusing but it is really complicated. I don't know why the neurologist I was seeing was so sure at first that my fibro is work-related. And now doesn't want to have anything to do with it. I am kind of angry with him and feel like I probably should just find a new doctor.
 

1sweed

Moderator
Joined
Feb 4, 2013
Messages
1,956
Reason
DX FIBRO
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01/1995
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US
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Indianagirl,
I am sorry to hear that your doctor had a change of heart in helping you. It might have something to do with the new healthcare laws and nothing to do with anything that happened in the office visits. A lot of doctors are finding the rules keep them from helping their patients. That said I know what is like to feel safe and comfortable with a nice doctor and believe what he tells me, only to find out what he said in the office visit was not mentioned in his write ups in my file, and then feeling the big let down. Once you get started with medicare it might be worthwhile to search out a doctor who will work with you in treating your fibro.

By the way I am glad your back, I have missed seeing your posts and knowing how your doing. I am also happy you got your SSD. :)
 

Trellum

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Jul 17, 2013
Messages
1,788
Reason
DX FIBRO
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04/2011
Country
NL
State
NL
Congrats on getting your SSD, Indianagal! Glad to see you coming back and sorry to hear you are not feeling well at all :( But dn't worry, I'm sure you will find a good doctor to work with you. This doctor of yours doesn't sound like the best, but once you start with medicare you can take your time to check for a good rheumi :)

By the way, I'm also experiencing a lack of appetite, which is also good because I've a few pounds to lose! I feel much better than when I was overweight tho. I'm sure you will as well once you lose the extra weight :)
 

Indianagal

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I have started on Lyrica again so hopefully I will start feeling better. Not feeling so lousy this morning which is good. I am going to look for a rheumi this next week. The doctor I saw the other day is a GP, when I picked up the Lyrica yesterday it says on the label to take 200mg 3 times a day. Never have taken that much and going to just start out with 200mg once a day. If I feel the need after a few days I will increase it. I don't think a specialist such as a rheumatologist would recommend such a high dosage. What do you think?
 
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