- Feb 24, 2017
- DX FIBRO
Hi, all newbie here.I've had symptoms for 15 years, diagnosed 5 yrs ago. I've had headaches all my life, but escalated to migraines after severe life-changing reaction to Levaquin. Amitriptylline, Gabapentin, Migrelief, several OTC supplements. Was on a beta blocker but side effects too much. Now, have baldness to both temples (I'm a woman) and not sure if fibro caused or beta blocker or ? Dr. now wants to start me on Topamax, but I'm scared as I react oppositely to a lot of meds, i.e. Niquil keeps me up, caffeine makes me sleep, etc.; my husband calls me "opposite girl". I am so thankful I found this forum as i now know that I am not alone. I feel everyone's pain that I've read in these forums and sympathize/empathize with all of you. How do all of you keep away the useless feelings that I have? I can't work so it's all on my husband's shoulders. Every single time I do any "normal" activity causes repercussions. Trying to help daughter plan wedding for this year; other daughter married last year. I feel like a shadow of my former self and I want that person that body back. How do you all cope with everything? How do you feel that you contribute in your household? How do you try to explain to your husband that "it's not you it's me"? How do I stop my family from constantly asking "how are you today?"? or "do you have a migraine today?"? or "I don''t want you doing that if you're not up to it"? How do you get support without your family feeling sorry for you all that time.? How do you stop the frustrated- fueled complaining? I'm so sorry to ramble. I am finding this post to be cathartic, though. I hope that all of you have a good day today or at least a better one than yesterday, which is a blessing. thank you all for "listening".