- Dec 2, 2016
- DX FIBRO
Not out of turn at all.Hi. I am new and apologies if I am speaking out of turn.
I am not sure what a flare up is yet because according to my notes my condition has only had one trajectory: worse. But on really bad days (like the ones I can do little more than sit on the sofa and moan), it feels like half of my face is numb and I slur my words. Because I can not seem to control my face, I also kind of can not get certain words out, mostly words that start with "B" or "M".
It is like I am still 'me' inside but my ability to make speaking happen is dampened.
My doc knows about it. We have not done anything about it yet.
A flare simply means that one or more of your symptoms of fibro get worse or start up at a certain time or following an activity or eating something or, with fibro, for no discernable reason.
Fibromyalgia is not a progressive symdrome, so it will not get worse automatically. It does not inherently have a trajectory of "worse".It will get worse if other syndromes or diseases enter the picture, or if your life becomes very stressful, or simply because your body is agine, if you don't take really good care of it and exercise and so on. You are dooing those things, so there is no need for you to expect the fibro to get worse, excspting the fact that once a person gets old things just don't work as well, fibro or not.
Mushy speech is a factor of fibro. But half your face being numb is not a symptom found in fibromyalgia, so I think it's possible something else is going on there.
We always recommend that at any time you experience a NEW symptom, you go to a doctor and ask for it to be checked out because it could be something else you need to know about. You doctor knows, so you are on the right track.
Have you had a formal diagnosis of fibromyalgia? And what method, if you have, did the doctors use to diagnose?