FIBRO TYPE OF PAIN

sunkacola

Very helpful member
Joined
Dec 2, 2016
Messages
638
Reason
DX FIBRO
Diagnosis
00/0000
Country
Uni
State
Somewhere
I do hate how this disease progresses and seems to look for new opportunities to make bad situations worse. I just had my ACL replaced last week. It's painful enough, but we've already determined my pain is much greater thanks to fibro. It has been unbearable at times, and I've always handled pain pretty well. This is the first time in my life that pain caused me to be nauseated.

Fibro mostly affects my upper body - chest, back, arms. I have chronic costochondritis (inflammation of the chest cartilage) that creates constant pain in my chest and shoots lightning bolts across my torso and up and down my arms. I also have arthritis in my ribs (and other joints) that give me daily pain. The fibro takes those pains and magnifies them, rides down my nerves and digs its claws in. Adding insult to injury, I have genetic heart disease and am dying of that disease as it is progressing in my LAD. I've had 3 heart attacks. Think about it. My chest hurts all the time and I get shooting pains down my arms. This causes me a lot of anxiety and depression, as my heart is always the first thing that pops into my head when I feel those things. It's torture. And of course, anxiety can ramp up the fibromyalgia and create more anxiety, which isn't healthy for the heart. It can be a vicious cycle.
Hi Rummy,
Since you know that the anxiety is making the symptoms you have worse, and you are in a vicious cycle, you must break that cycle. I know it's hard. I know it feels impossible at times. But you can. I have suffered from anxiety and panic attacks for a long time. You may not ever be able to stop them from coming but you can change how you deal with them. Learn different ways of responding to your anxiety. Research it, find a bunch of different possibilities, and try them one at a time. Don't expect a quick fix, as I said above to Roxana. But you are the only person who can manage it; unfortunately no one can do it for you. I still have anxiety attacks and the occasional panic attack. But now I know exactly what to do when that happens. I do it, and the anxiety eases off. Not in one minute. Sometimes it takes many minutes. Sometimes it takes an hour. But I can and do manage it with techniques I have learned from my research and then practiced diligently. Easing an anxiety attack even if it takes an hour is better than having anxiety all day.

I strongly suggest you do the same. Learning to manage your anxiety more effectively may also help with your depression, as they feed into each other. Best of luck.
 

Roxana Ra

Member
Joined
Jun 4, 2020
Messages
18
Reason
DX FIBRO
Diagnosis
02/2015
Country
CA
State
ON
Hi Roxana,

I have understood all too well the horror you are going through, and many of us on this forum can also. Your case is not at all unusual, I am sorry to say. Many if not most of us have had the experience of having no success with multiple pain medications. This is one of the reasons that I believe so strongly in the other things that you can do to help yourself, and do not ever recommend relying on medication.

I know it is scary. I was terrified at first. It took me a long time to come around to where I am now, and be able to give advice to others.

One problem is that we in the western world have been trained to expect a quick solution to everything, especially to pain. Advertising has done this, as well as the proliferation of narcotic pain drugs, which do give a high frequency of relief. But for a condition such as this, those drugs are not the answer.

If you have a simple headache and take an OTC drug and it makes the headache go away, that's one thing. But when you have a systemic syndrome, treating it with drugs and expecting that to solve your problem is not realistic. You have to approach the entire health of your body and make changes in how you handle that on a day-to-day basis in order to have a better quality of life.

This takes time. It is not an easy or quick fix. there is no easy of quick fix for Fibromyalgia. It will benefit you if you stop expecting one. Understand that this is something that will take time, but that you can learn to manage and you can lesson the effect it has on your life.

If you were in an accident and lost a leg, you would not expect to be able to run in a prosthetic leg in a month. It takes time. But it's possible to learn to do that; thousands have. This is similar.

Take heart. You can learn how to manage this. I have. I spent three years taking narcotic prescription drugs and hardly being able to get out of bed many days. Now I can lead what has become for me a reasonably normal life, even if it is not what I used to have before fibro. Are there still days I am in abject pain and cannot accomplish a single thing? Yes! Are there days I am racked with pain and nothing helps? Yes.
But those days are not the majority of my days any more.

I am glad you are going to try medical grade cannabis. I found it helps me a lot, and you don't have to worry about addiction. Let us know how it goes for you.

My last piece of advice, and I hope you take it to heart, is do not take narcotic drugs like Tramadol. It will seem like a miracle at first if it works for you (that's how I felt at first). But soon one pill won't be enough and you'll have to take two. Then three. And then soon you are addicted and for most people coming off that addiction is like coming off heroin. Just don't go there.
I'll not take Tramadol. I'm trying as much as possible to stay away from meds.
I even tried a homeopatic treatment e few months ago. Unfortunately it didn't work for me.
My fam dr has prescribed Cymbalta today.
This is another dangerous med, as l read about it on line...
I'd like to hear your opinion but l'm sure no one with Fibro can be happy with antidepressants.
They're bad for the brain, right? as they give long term side effects.
I'll start these days (soon) taking the Yellow and the Blue cannabis oils and l'll definitely let you all know how l feel.
I want to fix my night sleep first. There are months since l haven't had a good relaxing sleep... i feel sooo tired!!
The thing is that in two weeks l have to restart my job, at the office. My disability leave is ending and l don't want to apply for LTD.
I believe that being active and going back to work can help me psychologicaly.
I have at least to try...

Thank you so much, Sunkacola.
I'm looking forward to read your responses on this forum.

Love you all. You're my family now. ❤
 

sunkacola

Very helpful member
Joined
Dec 2, 2016
Messages
638
Reason
DX FIBRO
Diagnosis
00/0000
Country
Uni
State
Somewhere
The cannabis tincture may help a lot with getting enough good sleep. Let us know how it goes for you.
Cymbalta never helped me but I hear it helps some people.
 

Sydney

New member
Joined
Oct 23, 2016
Messages
5
Reason
DX FIBRO
Diagnosis
10/2016
Country
US
State
NJ
Hi. Just wanted to say I recently upped my dose of Cymbalta to 60mg and it is definitely helping my depression, anxiety, and pain. I was on 30mg for three months before moving up to 60mg because I experienced less start up side effects you get with these drugs. So I hope it helps you a little as well. Smile and keep your chin up. :)
 

kimical

New member
Joined
Jul 8, 2020
Messages
7
Reason
DX FIBRO
Diagnosis
00/0000
Country
US
State
VA
Cymbalta didn’t agree with me, I take lyrica instead. It helps me with anxiety as well.
 

RummyT

Member
Joined
Jan 6, 2020
Messages
15
Reason
DX FIBRO
Diagnosis
3/2015
Country
US
State
NC
Hi Rummy,
Since you know that the anxiety is making the symptoms you have worse, and you are in a vicious cycle, you must break that cycle. I know it's hard. I know it feels impossible at times. But you can. I have suffered from anxiety and panic attacks for a long time. You may not ever be able to stop them from coming but you can change how you deal with them. Learn different ways of responding to your anxiety. Research it, find a bunch of different possibilities, and try them one at a time. Don't expect a quick fix, as I said above to Roxana. But you are the only person who can manage it; unfortunately no one can do it for you. I still have anxiety attacks and the occasional panic attack. But now I know exactly what to do when that happens. I do it, and the anxiety eases off. Not in one minute. Sometimes it takes many minutes. Sometimes it takes an hour. But I can and do manage it with techniques I have learned from my research and then practiced diligently. Easing an anxiety attack even if it takes an hour is better than having anxiety all day.

I strongly suggest you do the same. Learning to manage your anxiety more effectively may also help with your depression, as they feed into each other. Best of luck.
Thanks for the response. I would like to point out that there is a difference between anxiety and an anxiety / panic attack. I have learned how to deal with attacks. Anxiety can last hours to days. An attack is sudden and can be debilitating, if you let it. However, an attack is actually less harmful than long periods of anxiety. (ask any cardiologist) You are right, though. Only I can control it and learn to deal with it.
 

sunkacola

Very helpful member
Joined
Dec 2, 2016
Messages
638
Reason
DX FIBRO
Diagnosis
00/0000
Country
Uni
State
Somewhere
Thanks for the response. I would like to point out that there is a difference between anxiety and an anxiety / panic attack. I have learned how to deal with attacks. Anxiety can last hours to days. An attack is sudden and can be debilitating, if you let it. However, an attack is actually less harmful than long periods of anxiety. (ask any cardiologist) You are right, though. Only I can control it and learn to deal with it.
Hi rummy, Having dealt with anxiety most of my life I do of course know that there are different kinds of anxiety and just like you I have long term anxiety that goes on for days or weeks at a time as well. My advice was specific to how to manage anxiety attacks, which most people who have anxiety issues also have. I didn't mean to imply that there is only one kind of anxiety. I agree with you that probably long-term anxiety is more harmful overall. I am certain, in fact, that it along with many other factors has had a role in my developing Fibro. I know that by taking the best care possible of myself, which has included getting rid of as many stress factors in my life as possible, I have somewhat reduced the duration and severity of my long-grade anxiety, although have not removed it unfortunately. Remember too that there are many kinds of stress, not just mental stress. All of them are harmful to the body. I am still learning about this, myself.
 
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