rhea
Member
- Joined
- Mar 22, 2023
- Messages
- 10
- Reason
- DX FIBRO
- Diagnosis
- 02/2023
- Country
- CA
- State
- ON
I was diagnosed last month with fibromyalgia, and have been slowly coming to terms with what it means. I've been researching, reading, and speaking with people about it in order to grasp exactly what changes need to occur in my life so I can get by. I still feel as though I'm at a loss for information, and I think a big part of it is because there's no one thing that will work for everyone, it's a lot of figuring out what is going to work for you.
My doctor referred me to a chronic pain group, and I'm currently on the waitlist. It's run by a physiotherapist and my doctor says it focuses on managing pain, but also our brain's relation to it. He says that it's the best way to handle what's going on, as things like stretches and medications will only go so far. We focus on the brain, and pain management, and it should provide some relief. I'm not entirely sure how well I summarized that as I'm fatigued and my brain has not been at its best for a long time.
I find days where I get enough sleep at night easier, but, like this week, I've had very little sleep and my brain just isn't functioning problem. Brain fog is the term I believe. Not to mention my pain has been bad this week.
I have been feeling somewhat isolated. I enjoy chatting with my coworkers and friends, and we have candid conversations about life. They're aware of my diagnosis, but as none of them have fibro, they're still not entirely understanding of it. My husband and family are incredibly supportive, but there is a gap between how much they understand and how I function. I've been ensuring that I keep them as up to date on any information I get about fibro and what I NEED in order to function. But it's hard because my husband feels overwhelmed since there are days where he has to take on more, leaving less time for him to take care of himself. I feel bad, but I am also quite limited in what I can do, especially when I'm having a really bad pain day. I am seeing a therapist to help with my mental health, as I've been battling depression and anxiety for years now. Both of which could have spurred from neck issues I had at least 10 years ago, which upon educating myself on the basics, may have been my first sign that I have fibro (the neck issues).
I work as a teacher and most of my mental faculties are spent at work, and by the time I get home, or try to focus on something besides work, I find myself unable to do so in a productive way. I can still get things done, but I start losing focus and coherency (I may be writing this post, but my brain is unfocused at the moment and I feel I'm mostly rambling at this point).
I have a dog and two cats who, more often than not, keep me sane and keep me going. The fact that they rely on me has been a good motivator to get my ass out of bed each day. My parents also have four dogs, which I lived with before moving in with my husband, and I'm very attached to. Visiting them has helped with my mental health and my motivation to get out of the house for something besides work. I still struggle with trying to maintain and keep plans with friends, but they try to understand as much as they can.
I read a post that was linked to a previous post about coping with fibro and certain things you can do to help with it (I read a few posts before posting), and found it really helpful. Sorry, I've already forgotten who posted it... but it was helpful!
My doctor referred me to a chronic pain group, and I'm currently on the waitlist. It's run by a physiotherapist and my doctor says it focuses on managing pain, but also our brain's relation to it. He says that it's the best way to handle what's going on, as things like stretches and medications will only go so far. We focus on the brain, and pain management, and it should provide some relief. I'm not entirely sure how well I summarized that as I'm fatigued and my brain has not been at its best for a long time.
I find days where I get enough sleep at night easier, but, like this week, I've had very little sleep and my brain just isn't functioning problem. Brain fog is the term I believe. Not to mention my pain has been bad this week.
I have been feeling somewhat isolated. I enjoy chatting with my coworkers and friends, and we have candid conversations about life. They're aware of my diagnosis, but as none of them have fibro, they're still not entirely understanding of it. My husband and family are incredibly supportive, but there is a gap between how much they understand and how I function. I've been ensuring that I keep them as up to date on any information I get about fibro and what I NEED in order to function. But it's hard because my husband feels overwhelmed since there are days where he has to take on more, leaving less time for him to take care of himself. I feel bad, but I am also quite limited in what I can do, especially when I'm having a really bad pain day. I am seeing a therapist to help with my mental health, as I've been battling depression and anxiety for years now. Both of which could have spurred from neck issues I had at least 10 years ago, which upon educating myself on the basics, may have been my first sign that I have fibro (the neck issues).
I work as a teacher and most of my mental faculties are spent at work, and by the time I get home, or try to focus on something besides work, I find myself unable to do so in a productive way. I can still get things done, but I start losing focus and coherency (I may be writing this post, but my brain is unfocused at the moment and I feel I'm mostly rambling at this point).
I have a dog and two cats who, more often than not, keep me sane and keep me going. The fact that they rely on me has been a good motivator to get my ass out of bed each day. My parents also have four dogs, which I lived with before moving in with my husband, and I'm very attached to. Visiting them has helped with my mental health and my motivation to get out of the house for something besides work. I still struggle with trying to maintain and keep plans with friends, but they try to understand as much as they can.
I read a post that was linked to a previous post about coping with fibro and certain things you can do to help with it (I read a few posts before posting), and found it really helpful. Sorry, I've already forgotten who posted it... but it was helpful!