First thought on diagnosis of Fibromyalgia

[kris]

I would like to know how did you or somebody else feel when they or you was first diagnosed with it.

 

[Janet L]

think for most people, I know for me, it was a sense of relief. A bit like "I knew I had something, I knew I wasn't crazy".

It might sound dramatic, but that's how I felt.

How did the person you care for feel? Ever ask them?

 

[kris]

They always say to me that they do not know what is going to happen next like there is no tomorrow. After a while, most of us tend to not ask because we already feel what they feel before their told what they have.

 

[Indianagal]

I was first diagnosed with bilateral carpal tunnel syndrome which required surgery on both hands. While being off work waiting for surgery I noticed that not only did my hands hurt but also both arms, shoulders, back and legs. I started having 'fibro fog' or what I call mental slowness. I was first diagnosed by my family doctor and then it was confirmed by a neurologist. My legs felt at first like lead weights.

 

[1sweed]

When I was first diagnosised, about 15 years ago, doctors really did not believe in their own diagnosis. I was told I was depressed and it was caused because I may have had a fight with my husband. I was crazy and had a great imagination. Boy, your good at making things up or I never heard anyone say that before. Ya, I got depressed cause no one really believed me. Then in 2000, I was re-diagnosised. How I felt about it was your question. At first I thought it was a catch-all noncommittal diagnosis just to get rid of me. The doctor was not really a believer himself and my other doctor's thought it was MS. Plus, when family thinks your just lazy it is hard to wrap your brain around fibromyalgia. But finally I came to terms with it and accepted the diagnosis.