Follow Up: Pain in Head and Neck

MissNeverWell

Active member
Joined
Oct 15, 2022
Messages
97
Reason
DX FIBRO
Diagnosis
03/1992
Country
CA
State
ON
Hi all,

I couldn't find my original posts and reactions to it, but just wanted to let you know that I saw a walk-in clinic doctor to have a form filled out, and asked about the moderate to sometimes severe pain in the back of the left side of my head, particularly around the occipital lobe area, and behind my ear.

The doctor was impatient and outright questioned me why I don't have a family doctor. She wouldn't sign the ADP form because the hearing test was not attached, then I remembered the audiologist gave it to me separately and I forgot to bring documentation. However, after instructing me to move my head and neck in various positions, she stated that it was from tight muscles in the side of my neck. However, the type of pain is not the dull, aching, tightness type that I (perhaps inaccurately) associate with muscle stiffness, but more like nerve pain at various intersections that cause redness and indentation of my glasses/hearing aid into the skin. However, she did give a referral for a physiotherapist for me to search, so I could find one and check with them. I find they are sometimes better than the doctors.

Meanwhile, I still have trouble with my right eye, but without a g.p. for a referral, that will have to wait.
 
@MissNeverWell I find different pains hard to describe. The accepted terms drs seem promise don't seem to have appropriate words to describe things. so having an appt with an attitude like that makes me kind of crumble a bit and almost give in from trying to discuss anything.

Interesting you find physiotherapist more forthcoming - whilst drs were either testing me everything under the sun, or alternatively almost ignoring many of my symptoms, it was a physio who said sounds like fibromyalgia or rheumatoid arthritis to me. He was spot on on both conditions, yet it still took over another year for doctors formally to diagnose both...

I wish you well for the next round of appts you face
 
@MissNeverWell I find different pains hard to describe. The accepted terms drs seem promise don't seem to have appropriate words to describe things. so having an appt with an attitude like that makes me kind of crumble a bit and almost give in from trying to discuss anything.

Interesting you find physiotherapist more forthcoming - whilst drs were either testing me everything under the sun, or alternatively almost ignoring many of my symptoms, it was a physio who said sounds like fibromyalgia or rheumatoid arthritis to me. He was spot on on both conditions, yet it still took over another year for doctors formally to diagnose both...

I wish you well for the next round of appts you face
I also find it difficult to describe types of pain beyond adjectives like sharp, aching, etc. ; then when I go to the doctor, I am so anxious about the interaction that I forget to identify what type of pain, so the doctors take the path of least resistance, do a superficial evaluation based on their assumptions of what I tell them, and come up with the most common diagnosis.
 
Hi @MissNeverWell 👋🏻, I'm so sorry you got treated that way, I still dont understand why dr's just can't ve nice, kind, and understanding, (I'm sure it should be the bare minimum of any health professional?) I'm genuinely considering changing my gp right now, the only one they keep putting me to see, (maybe the only one available at the time) kinda jokes around about my symptoms (not sure if it's just her personality or just trying to lighten the mood?) but I really don't want someone joking around when I'm not in the mood for that (I feel like I'm not being taken seriously) I have strange pain and odd sensation on the left side if my throat/thyroid/neck area, she tried explaining, over the phone (even without seeking me) it was probably a tense neck???? Asking me if the pain was inside or out! (Like how can you explain/answer that?) It's not a pain I've had before so I've nothing to compare it to? (I've only stayed with them cos I've been there for a few years and they know a lot about me, but I'm not sure it's wortth it anymore) ps miss never well, I hope that you do find a good health professional that can get all you health needs sorted out in a kind and helpful way
🩷🌼💜
 
Hi @MissNeverWell 👋🏻, I'm so sorry you got treated that way, I still dont understand why dr's just can't ve nice, kind, and understanding, (I'm sure it should be the bare minimum of any health professional?) I'm genuinely considering changing my gp right now, the only one they keep putting me to see, (maybe the only one available at the time) kinda jokes around about my symptoms (not sure if it's just her personality or just trying to lighten the mood?) but I really don't want someone joking around when I'm not in the mood for that (I feel like I'm not being taken seriously) I have strange pain and odd sensation on the left side if my throat/thyroid/neck area, she tried explaining, over the phone (even without seeking me) it was probably a tense neck???? Asking me if the pain was inside or out! (Like how can you explain/answer that?) It's not a pain I've had before so I've nothing to compare it to? (I've only stayed with them cos I've been there for a few years and they know a lot about me, but I'm not sure it's wortth it anymore) ps miss never well, I hope that you do find a good health professional that can get all you health needs sorted out in a kind and helpful way
🩷🌼💜
Many thanks for your empathetic and understanding response; it means a lot to me after such an experience. Some of the questions these doctors ask makes you shake your head, doesn't it? Hang on to that insight regarding the strange pain and sensation on the left side of your neck/thyroid area; I believe we have intuitive ability that doctors don't have; of course, part of that is we patients have an experiential understanding of the symptoms, whether or not we can verbalize/describe them accurately and effectively. I believe we have an additional type of intelligence based on this experiential knowledge that alerts us to similarities, patterns, areas of anatomy/physiology affected that diagnostic machines and questionnaires don't pick up on. Whether or not any pathology shows up, your experience is real, and your bodily intelligence says something is off here. For example, I have an ongoing similar problem with the left side of my throat due to gristle from a frozen dinner getting stuck in my throat, taking the hearsay advice of swallowing boiled water to get it down (which burnt the tissue, I believe), and a laryngoscopy that caused pain and injury to the esophagus (that was the guestimate after ending up in Emergency with severe chest pain). All these factors merged to prevent me from swallowing properly, especially on that side, ever since. Eventually, I was able to eat more raw foods, but it's hit and miss, and I've ended up with blood blisters from sour, sharp or hot foods that also block my swallowing. And yet, my mom was finally, after extensive testing and emergency room visits, with hyperactive thyroid, her doctor informed me that genetically, I had a higher risk of developing. Although my blood work shows normal thyroid functioning, there are subtle, nonclinical signs that something may be amiss - weight loss, hoarse voice/inability to sing, powdery skin, thinning/loss of hair. I'm glad it hasn't reached the clinical level yet, but that doesn't mean I dismiss these symptoms altogether.
 
There's definatly something going on with your health @MissNeverWell💯,
it does sound like thyroid, (but there could be other causes ) and yes some questions they ask can make you feel like shaking your head and make you feel uncomfortable, I was sent by my gp to the A+e bout 2 months ago for stroke like symptoms, they brought a male student in the cubicle (without asking me) and he asked about my mental health (I looked him in the eye and asked why) he said we ask everyone (strange cos the guy in the cubical next to me wasn't asked?) They sent me a text message to do a survey, + I put everything i experienced so???, anyway wishing everyone well, please find something good to do/go/talk to (if you can, if you feel down/fed up, it helps me)
🍀🧚🏼‍♀️🍀
 
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