MsRant
Member
- Joined
- May 7, 2021
- Messages
- 16
- Reason
- DX FIBRO
- Diagnosis
- 10/2005
- Country
- US
- State
- VA
Heya. Rant here, new to the site.
I have been diagnosed with fibro since the early 2000's. I also have epilepsy and diabetes. The complications between them suck, but not why I came here today, at least.
Currently I am in Physical Therapy. My bicep has been have so many spasms and won't relax, which is causing some tendonitis, which is pulling on my shoulder and I have lost range of motion in my left arm. ok, cool, let's work on it and get me back to livable. I can do this!
Here comes my issue, my rant, my frustration, my tears. Been going about 2 months, things are progressing, the pain isn't better but the range is improving. A couple of times my regular therapist has been busy and I have worked with others there. Yesterdays appoint was with one of the others. I cannot say I am a fan of hers, but I am there to work on my issue, not make forever friends, ya know? But, then, I was talking about the pain, and the spasms, and she says..."Muscle spasms have nothing to do with Fibromyalgia". I am sitting here dumbfounded typing this, getting upset, again. The general ignorance of so many professionals when it comes to fibro. How can you treat me when you do not even understand what I am dealing with? I am very upfront about my bad experiences with docs and therapists who have hurt instead of helped me in my quest to keep my life working. I cannot let "professionals" push me till I end up in bed unable to move. How can I trust you and your advice and direction when you tell me I am wrong about what I live with every single day?
I have spoken to the office about getting set up with her, and others. I need a working relationship with health professionals I can trust. It's what I need to get my best positive outcome. I am going to have to say something again, and then I become the whining patient for advocating for myself.
It's disheartening. Stressful, painful, depressing, angering, everything I work so hard to minimize in my life. To get.."better". *growls*
I have been diagnosed with fibro since the early 2000's. I also have epilepsy and diabetes. The complications between them suck, but not why I came here today, at least.
Currently I am in Physical Therapy. My bicep has been have so many spasms and won't relax, which is causing some tendonitis, which is pulling on my shoulder and I have lost range of motion in my left arm. ok, cool, let's work on it and get me back to livable. I can do this!
Here comes my issue, my rant, my frustration, my tears. Been going about 2 months, things are progressing, the pain isn't better but the range is improving. A couple of times my regular therapist has been busy and I have worked with others there. Yesterdays appoint was with one of the others. I cannot say I am a fan of hers, but I am there to work on my issue, not make forever friends, ya know? But, then, I was talking about the pain, and the spasms, and she says..."Muscle spasms have nothing to do with Fibromyalgia". I am sitting here dumbfounded typing this, getting upset, again. The general ignorance of so many professionals when it comes to fibro. How can you treat me when you do not even understand what I am dealing with? I am very upfront about my bad experiences with docs and therapists who have hurt instead of helped me in my quest to keep my life working. I cannot let "professionals" push me till I end up in bed unable to move. How can I trust you and your advice and direction when you tell me I am wrong about what I live with every single day?
I have spoken to the office about getting set up with her, and others. I need a working relationship with health professionals I can trust. It's what I need to get my best positive outcome. I am going to have to say something again, and then I become the whining patient for advocating for myself.
It's disheartening. Stressful, painful, depressing, angering, everything I work so hard to minimize in my life. To get.."better". *growls*