Holly_475
New member
- Joined
- Oct 20, 2020
- Messages
- 3
- Reason
- Undiagnosed
- Diagnosis
- 00/0000
- Country
- UK
Hi all. Without going into it in depth, I meet all the symptoms/issues for Fibromyalgia, and two people I know who have it said it really sounds like that when I described my symptoms - before I knew they had it themselves. I took the online test suggested here and it said I meet the criteria via Scenario A.
Had a phone appointment with a rheumatologist today. Gave him all the details I’d recorded/noted, past history etc. And he just... shrugged almost. Said I didn’t fit any rheumatological disorders, but he was sending a blood form and I should have them done ASAP, and I would have an in-person appointment with them before Xmas.
I asked if he could think of any reason why I’m in so much pain, why I had all these symptoms. He said he didn’t know.
I’m not trying to self diagnose or make it fit, but I’ve been suffering so long and I feel so frustrated and depressed about this. No one can seem to give me a diagnosis so I can get help. Why is he bothering to test and see me if he’s saying he doesn’t think I have a rheum issue?
Did anyone else have this issue when they started out investigating these health issues?
Had a phone appointment with a rheumatologist today. Gave him all the details I’d recorded/noted, past history etc. And he just... shrugged almost. Said I didn’t fit any rheumatological disorders, but he was sending a blood form and I should have them done ASAP, and I would have an in-person appointment with them before Xmas.
I asked if he could think of any reason why I’m in so much pain, why I had all these symptoms. He said he didn’t know.
I’m not trying to self diagnose or make it fit, but I’ve been suffering so long and I feel so frustrated and depressed about this. No one can seem to give me a diagnosis so I can get help. Why is he bothering to test and see me if he’s saying he doesn’t think I have a rheum issue?
Did anyone else have this issue when they started out investigating these health issues?