I see my rhuematologist Oct 1 so I am going to bring this up to him, and see what he says. When I go one day off of it, I start feeling my legs hurting with a nerve type pain, and my muscles hurt worse. I also start having painful zapping in my head that hits all of a sudden. I will ask what could be a good alternative. There may not be one. I know one thing, I am on so many meds it's pitiful. Neurontin, effexor, omeprazole, aspirin, levothyroxine, pilocarine, modafinal, plaquenil, vitamin D3, fish oil, niacin, and a couple for allergies. Some of these I have to take twice or three times per day. With all of this I shouldn't even have to eat. lol....
Thanks all for your comments. They are very helpful and supportive.