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moe1959

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I'm not trying to sell anything here, well not for personal profit. Anyway I bought a book called Women Living with Fibromyalgia by Mari Skelly. I feel like I want to scream from the rooftops! It's not my imagination! It's real! And all you people that look at me with a lifted eyebrow!!! Please read this book! Omgosh, this is a real disease, and yes its attacking my body! And no there's not a cure!

If I never pick this book up again, I'm happy, I'm valadaited, so ewwwwww, Bad word. Anyway I feel COMPELLEDd to share.

Chapter 2 : And some sources state that about 50% of fm patients report heightened sensative to oder, noises, bright lights ,medication, changes in weather and or various foods.
Finially difficulty processing, understanding, and retaining information , is another( maddening )I will be and sometimes disabling symptom that many FM patients deal with every day.

I will be bringing this info to my next Dr. APPOINTMENT.

THANK YOU VERY MUCH.
 

1sweed

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Feb 4, 2013
Messages
1,956
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DX FIBRO
Diagnosis
01/1995
Country
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moe1959,

Thank you for sharing this book with the forum. All of us are always on the look out for a book that explains Fibromyalgia, and tells the truth about this disease. Shout it from the rooftops. It is real and really painful and hard to live with. Now party! :)
 

TeeKae

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DX FIBRO
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00/0000
Country
US
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I read this book about a month ago. The New Fibromyalgia Remedy by Daniel C. Dantini M.D. He prescribes antivirals and getting tested for food allergies. I have had fibromyalgia for almost 20 years and have tried many things. Nothing has ever worked before. I eliminated milk, coffee and cheese from my diet and I take 500 mg of Valacyclovir at night before bed. I saw a fibromyalgia specialist in NYC who agreed and prescribed the antivirals for me. I FEEL LIKE I'M GETTING MY LIFE BACK. I have energy again. It took about 3 weeks for the antivirals to start working. I can actually go grocery shopping and biking in the same day. I don't have that never ending fatigue. I wanted to get this information out there. I believe fibromyalgia is virus related. I am feeling better. Not 100% but over 60 %. I have been taking antivirals for almost 5 weeks.
 

diamond

Legendary member
Joined
Sep 18, 2015
Messages
1,548
Reason
DX FIBRO
Diagnosis
01/2008
Country
UK
State
anywhere
TeeKae any side affects from the anti virals..I am getting desperate now for something...but really I don't think fibro is a viral thing. What information or research persuaded you it was viral?

Glad somethings helping you though!
 

moe1959

Very helpful member
Joined
Sep 13, 2014
Messages
708
Reason
Undiagnosed
Diagnosis
09/2014
Country
US
State
wa.
That's great news, I will share with my Dr. Thank you!
 

TeeKae

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DX FIBRO
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Country
US
State
Ny
I saw a Fibromyalgia specialist in NYC who told me about the viral connection and the book I mentioned backs it up. I haven't had any side effects that I'm aware of.
 
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