Guaifenesin protocol and fibromyalgia

mrstiggywinkle

New member
Joined
Nov 24, 2020
Messages
6
Reason
DX FIBRO
Diagnosis
09/2020
Country
US
State
CA
Hi everybody. Diagnosed at age 60 with FM after years of doctors throwing their hands up in the air saying they couldn't figure out what was wrong with me. The typical. My physical therapist recommended the guaifenesin protocol, saying it worked for him, his wife and both their mothers. I've finished two months already.
Can I please hear from anybody else who has tried the protocol? I'm doing because I want to get better and I haven't heard of a better alternative....
 

Dooi

Moderator
Joined
Feb 4, 2013
Messages
170
Reason
DX FIBRO
Diagnosis
06/2012
Country
CA
Hi @mrstiggywinkle welcome.

It's such a relief to finally get a diagnosis. I'm always amazed how often, and how many doctors, most of us have had to make appointments with before finally being able to get a proper diagnosis.

Good for you for sticking with it and not succumbing to thinking you were crazy (which is what a lot of people I fear start to think).
 

Dooi

Moderator
Joined
Feb 4, 2013
Messages
170
Reason
DX FIBRO
Diagnosis
06/2012
Country
CA
First I've heard about the guaifenesin protocol so I'll do more research. Thank you for bringing it to our attention.
 

Cowards

New member
Joined
Nov 24, 2020
Messages
1
Reason
DX FIBRO
Diagnosis
08/2012
Country
US
State
SC
I tried it but it was extremely difficult to reduce products that have salicylic acid in them. I tried for a about a month but did not feel any difference. i was interested since there were many success stories. Although there is a claim that you can take GUI without long term effects, I am still somewhat skeptical
 

Dooi

Moderator
Joined
Feb 4, 2013
Messages
170
Reason
DX FIBRO
Diagnosis
06/2012
Country
CA
I tried it but it was extremely difficult to reduce products that have salicylic acid in them. I tried for a about a month but did not feel any difference. i was interested since there were many success stories. Although there is a claim that you can take GUI without long term effects, I am still somewhat skeptical

I'm curious about the success stories?

I know that a lot of things we read on the internet are backed, in part, by someone selling or profiting from something. It's for this reason I try to be careful. I've seen so many "miracle cures" and "scams" that are promoted online, wasting the time, energy and dollars of people such as ourselves just so that some business, or some online "snake oil salesman" came make some money.

When I read about "protocols" my spidy sense starts to tingle.
 

mrstiggywinkle

New member
Joined
Nov 24, 2020
Messages
6
Reason
DX FIBRO
Diagnosis
09/2020
Country
US
State
CA
Hi, one of the things that my fibromyalgia specialist impressed upon me was how scrupulous you have to be in eliminating products with salicylic acid and products containing mint or from the mint family. Basically, if you don't do a thorough revision of ALL the products you are either consuming or placing on your skin, you are committing an act of self-defeat. I'm a gardener, and now I wear gloves constantly because plants contain s. acid. You can't just commit halfway. I personally have no way of knowing whether in the end the salicylic theory is the answer to improving fibromyalgia, but no one has offered me a better solution. So until then, I am committing myself to this protocol 100% while still keeping my eyes and ears open for other promising information. I WANT to live an active life. I'm not willing to give up yet. This past year has been the worst in terms of FM, and that was my catalyst to find a way to recuperate my health. Carpe diem!
 

sunkacola

Very helpful member
Joined
Dec 2, 2016
Messages
1,201
Reason
DX FIBRO
Diagnosis
00/0000
Country
Uni
State
Somewhere
Never heard of that theory, but you never know what might help. Please let us know how this works out for you, as it could be helpful to others.
Wishing you the best of luck....
 

RJay

New member
Joined
Apr 24, 2021
Messages
2
Reason
DX CFS
Diagnosis
03/1976
Country
US
State
CA
Have been in Guai for many years and before that the gout Rx that was used (Anturane and Probenecid). It’s a tough treatment depending on the extent or severity of the condition. Some of the attacks it provokes can really flatten you, but ease up over time. Have cleared up many areas. It’s a safe longterm OTC medicine.

Have not found aspirin to be that problematic. A neuro put me on the latter, but I felt that the Guai was still working. It takes time, though, to find the right dose that works as people differ.

I have since been diagnosed with other conditions, and this may also be a problem for those who are also undiagnosed for other ailments that can exist with fibro. Mixed connective tissue disease, different forms of scleroderma, lupus, etc. Rheumatology is a real mystery field with changing diagnoses and doctors with different specialities.

Another remedy some have gotten results with is LDN (low dose naltrexone). There are many forums discussing this drug which seems to help many with different chronic conditions. It seems much better than other drugs commonly prescribed (Lyrica, Gabapentin) that have longterm effects and don’t address the root cause of symptoms.
 
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