Ccjanus
New member
- Joined
- Feb 3, 2016
- Messages
- 4
- Reason
- DX FIBRO
- Diagnosis
- 10/2015
- Country
- CA
- State
- ON
I wanted to add this comment Oman older thread about hair loss and it was closed..
I was diagnosed with cicatricial alopecia ( aka scarring alopecia) 3 years ago no was diagnosed with fibro a few months ago. Since then I became involved in CARF , an organization that helps fund research and holds a bi annual patient Doctor conference. If your scalp hurts,and you have hair loss you should see a dermatologist for a diagnosis. Or if you've lost your eyebrow hair and your hairline and sideburns hair are receding,that is another form of scarring alopecia. There are medications ( I know, more pills .:-() to stop the loss. With this category of alopecia, once the hair is gone, it is gone for good, so getting treatment quickly makes a difference. In Toronto Canada there is a support group called CASA. In the us, there are several cities with support groups run by doctors..if you have these symptoms, check out CARF or message me.
If the hair loss is in patches , or you've lost all you hair, then it's alopecia Areta or another type of alopecia.In the us there is an organization called NAAF that has info and support. In Canada it's CANAAF. again get a referral to a dermatologist with an interest in hair to get. Correct diagnosis and treatment.
If anyone has info/ research connecting fibro to alopecia, I'd love to see it, so that maybe we can solve the fibro thing through hair loss research...???
I was diagnosed with cicatricial alopecia ( aka scarring alopecia) 3 years ago no was diagnosed with fibro a few months ago. Since then I became involved in CARF , an organization that helps fund research and holds a bi annual patient Doctor conference. If your scalp hurts,and you have hair loss you should see a dermatologist for a diagnosis. Or if you've lost your eyebrow hair and your hairline and sideburns hair are receding,that is another form of scarring alopecia. There are medications ( I know, more pills .:-() to stop the loss. With this category of alopecia, once the hair is gone, it is gone for good, so getting treatment quickly makes a difference. In Toronto Canada there is a support group called CASA. In the us, there are several cities with support groups run by doctors..if you have these symptoms, check out CARF or message me.
If the hair loss is in patches , or you've lost all you hair, then it's alopecia Areta or another type of alopecia.In the us there is an organization called NAAF that has info and support. In Canada it's CANAAF. again get a referral to a dermatologist with an interest in hair to get. Correct diagnosis and treatment.
If anyone has info/ research connecting fibro to alopecia, I'd love to see it, so that maybe we can solve the fibro thing through hair loss research...???