head and jaw

Sophiexx

New member
Joined
Apr 12, 2020
Messages
6
Reason
DX FIBRO
Diagnosis
09/2019
Country
UK
does anyone suffer with jaw joint pain or have parts of the top of your head that are extremely tender and painful any ideas what would work?

Thank you
 

Affinity

Distinguished member
Joined
Sep 9, 2020
Messages
123
Reason
DX FIBRO
Diagnosis
05/2014
Country
US
State
TX
Yes I have TMJ disorder and am being seen by a specialist right now. I was referred to the specialist by my dentist because I was having jaw pain and I thought I had an infection but it turned out that I was clenching and grinding again due to the heightened anxiety this year. I have dealt with this my whole life but similar to fibro there are flare ups that are usually anxiety or stress related.
 

JayCS

Senior member
Joined
Sep 5, 2020
Messages
305
Reason
DX FIBRO
Diagnosis
02/2020
Country
GE
Opposite here: I thought it was my trigeminus, perhaps with a stress-component, but it was two root inflammations. They have been/are being treated and even now they sometimes react to stress a little bit. But nothing like before! I wonder whether they caused some of the fibro-pain too or whether that's better "only" because I've found things that are very much helping...
 

zoeymiler45

New member
Joined
Oct 19, 2020
Messages
6
Reason
DX CP
Diagnosis
01/2019
Country
US
State
NY
I am suffering from it and its too painful.
 

maavalos8

Member
Joined
Jan 23, 2021
Messages
12
Reason
DX FIBRO
Diagnosis
01/2021
Country
US
I have never had jaw pain and about 6 months ago my jaw just locked on me out of nowhere. Now it clicks everytime I open and close, hurts when I lay on that side, moves in and out when I eat and the pain was going into my ear. I read it could be related to the fibro or RA.

I think I clench my teeth and don't realize it. Is that stress related??
 

JayCS

Senior member
Joined
Sep 5, 2020
Messages
305
Reason
DX FIBRO
Diagnosis
02/2020
Country
GE
Hi maavalos: I bet an osteopathy or similar gentle head-/jaw-physio can get rid of that, if it happened that suddenly. I wdn't consider it as fibro/RA till having tried that. Clenching teeth (bruxism) is often stress related, but not always, for instance it come from a physically wrong jaw position. Dentists can help there. (Mine however thought I did this, because my teeth look like it, but since neither an audio of my sleep nor my wife verifies that, they/we've decided my teeth look like that bc I've been eating lots of raw (fruit &) veg for decades.
I cd influence my jaw pain, despite it having dental origin, by relaxing immediately. I'm trained there using progressive muscle relaxation, autogenic training, imaginary journeys, single images*, self-hypnosis etc.. * At the moment it helps my sleep if I concentrate on flying a vividly changing stunt kite, strangely. But I then have to make extra sure that my jaw is relaxed.
But generally it's 'just' a matter of listening to my body, sensing into it regularly, something I can do a lot of the day if I need to. Sense it 'now'. And let go now. Repeat.... Some people will need reminders for that, once I decided I managed to do it many hours or all day. Now I just have a daily reminder if I'm still relaxed enough. I also have different types of daytime relaxation. I even do it while doing sports (table tennis): if necessary I relax after every tension (point).
 

djhsix

Member
Joined
Dec 11, 2020
Messages
17
Reason
DX FIBRO
Diagnosis
12/2020
Country
US
State
WA
I suffer from TMJ disorder. I also have arthritis in my right jaw. Not sure if it was caused by the TMJD. My clenching and grinding nearly destroyed my molars. I've got several root canals and crowns. Now I wear a nightguard to protect my teeth and jaw. I recommend getting one from the dentist. Expensive but worth it.
 

WhoDat83

Member
Joined
Aug 3, 2020
Messages
28
Reason
Undiagnosed
Diagnosis
00/0000
Country
US
State
LA
Hi all,
diagnosed with FM last august. dont have jaw issues so far but my scalp hurts. any suggestion?
obv my all body hurts but lately is neck, back and scalp.
 

sunkacola

Very helpful member
Joined
Dec 2, 2016
Messages
1,060
Reason
DX FIBRO
Diagnosis
00/0000
Country
Uni
State
Somewhere
Scalp hurting is a hard one, and it sounds awful. Poor you. I can't help but wonder if it could have something to do with whatever products you are using on your hair/scalp. Maybe try stopping the use of all of them and just rinse your hair with water instead for a couple of weeks and see if it helps. (You can actually not use shampoo at all, and it's healthier for your hair. I have not used shampoo for 7 years and my hair is longer and healthier than ever before).
If you have long hair, do you wear it up in a bun or twist or ponytail? sometimes that can cause it in people like us who are prone to random pain.
Would a scalp massage help? I've not had that particular issue, so maybe I am no help.
 

WhoDat83

Member
Joined
Aug 3, 2020
Messages
28
Reason
Undiagnosed
Diagnosis
00/0000
Country
US
State
LA
Scalp hurting is a hard one, and it sounds awful. Poor you. I can't help but wonder if it could have something to do with whatever products you are using on your hair/scalp. Maybe try stopping the use of all of them and just rinse your hair with water instead for a couple of weeks and see if it helps. (You can actually not use shampoo at all, and it's healthier for your hair. I have not used shampoo for 7 years and my hair is longer and healthier than ever before).
If you have long hair, do you wear it up in a bun or twist or ponytail? sometimes that can cause it in people like us who are prone to random pain.
Would a scalp massage help? I've not had that particular issue, so maybe I am no help.
short hair. i ll try the non shampoo and see how it goes
 

sunkacola

Very helpful member
Joined
Dec 2, 2016
Messages
1,060
Reason
DX FIBRO
Diagnosis
00/0000
Country
Uni
State
Somewhere
short hair. i ll try the non shampoo and see how it goes
Let us know how it goes. I am an advocate for not using shampoo. But I recognize that it may not be right for everyone. If you have dry hair it is good right from the start. If you have oily hair you may go through a period of time when your hair looks and feels awful. That's because your scalp is used to having to produce a lot of oil to counteract the stripping effect of shampoo. Ignore it, stay with no shampoo, cover your hair with a scarf. It will take a little while for the glands to adjust, but they will, and they will stop producing extra oil. You can look this up on line by googling "no-poo" or "no shampoo" and read a lot of people's experiences with it so you know it's worth it to go through the beginning stages.
best of luck!
 

maavalos8

Member
Joined
Jan 23, 2021
Messages
12
Reason
DX FIBRO
Diagnosis
01/2021
Country
US
Hi maavalos: I bet an osteopathy or similar gentle head-/jaw-physio can get rid of that, if it happened that suddenly. I wdn't consider it as fibro/RA till having tried that. Clenching teeth (bruxism) is often stress related, but not always, for instance it come from a physically wrong jaw position. Dentists can help there. (Mine however thought I did this, because my teeth look like it, but since neither an audio of my sleep nor my wife verifies that, they/we've decided my teeth look like that bc I've been eating lots of raw (fruit &) veg for decades.
I cd influence my jaw pain, despite it having dental origin, by relaxing immediately. I'm trained there using progressive muscle relaxation, autogenic training, imaginary journeys, single images*, self-hypnosis etc.. * At the moment it helps my sleep if I concentrate on flying a vividly changing stunt kite, strangely. But I then have to make extra sure that my jaw is relaxed.
But generally it's 'just' a matter of listening to my body, sensing into it regularly, something I can do a lot of the day if I need to. Sense it 'now'. And let go now. Repeat.... Some people will need reminders for that, once I decided I managed to do it many hours or all day. Now I just have a daily reminder if I'm still relaxed enough. I also have different types of daytime relaxation. I even do it while doing sports (table tennis): if necessary I relax after every tension (point).
Thank you!! I was trying to recognize when I clench my teeth and I'm actually doing it as I type. I'm not sure where it came from but I think being more mindful of when I do it might help?
 

JayCS

Senior member
Joined
Sep 5, 2020
Messages
305
Reason
DX FIBRO
Diagnosis
02/2020
Country
GE
Yep, but I can't "feel"/sense it, cos my teeth aren't even together. So I'm mindful not of "when I do it", but mindful of relaxing my jaw more and more, often in sort of "levels" of relaxation. When trying to get to sleep I now concentrate on a certain thing, starting with a short bout of self-hypnosis, counting down from 20 or some image (flying a stunt kite, strangely, helps keep my attention), then relax my jaw and then autogenic training for my whole body. I then find my jaw is the least relaxed part of my body. Like my dad's jaw always moved when he was concentrating... Mine doesn't move, just taut (not even particularly). Just having to focus more on this again, since I've had a lot more jaw pain again the last few weeks, maybe stress due to struggling with home office; then toothache came too, maybe unrelated, better since the filling on the opposite fell out.... Oh dear, dentist visits are a major fibro flare. *sigh *
 

sunkacola

Very helpful member
Joined
Dec 2, 2016
Messages
1,060
Reason
DX FIBRO
Diagnosis
00/0000
Country
Uni
State
Somewhere
I have had the tendency to grind my teeth as well. What works for me is to become aware of the circumstances under which I do it. That allows me to be mindful of it and I will notice when I start to do it. For me it is always stress. I had almost conquered it, meaning almost never did it, until 2020 came and it became stressful just to go to the grocery store. I found myself clenching my jaw the whole time I was in town. Once I became fully aware that I was doing it and why I was able to stop most of it, and now I will notice right away if I am doing it. Then I will talk to myself, telling myself that I have good face covering, am taking all the proper precautions, and that it is OK. Usually that puts an end to it ....until the next time. Maybe when the plague is behind us, I will go back to almost never doing it.
 
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