tracyferrell
New member
- Joined
- Apr 11, 2016
- Messages
- 5
- Reason
- Undiagnosed
- Diagnosis
- 04/2016
- Country
- US
- State
- PA
Hello everyone,
I haven't been officially diagnosed yet and quite frankly I'm hoping like heck that I don't have Fibro but it seems as if I pretty much have every symptom but 2 (as well as the allodnia, although I did panic a bit when I had 2 mesquito bites and the next day they felt as if someone punched me in the arm there).
I am still shaking my head in disbelief after nearly 6 months of this.........and to think that it all started out as what I was certain was carpal tunnerl but emg came back neg, and then the PT's and myself thought it was TOS, and then the MRI confirmed that it was a cervical herniated disc; long story short the surgeon I went to (best surgeon in town) was ready to do surgery because I had all the classic symptoms of the dermotomal pattern......well, before I had decided to go ahead and have the surgery those classic nerve root symptoms have all but disappeared and then a host of other 'unrelated' symptoms started...it was and still does quite frankly make me so angry. After doing hours upon hours upon hours of fibro, and herniated disc as well as myofascial pain research I was to the point I was hoping to God that these mysterious random pains/aches throughout my body as well as the constant burning sensation I have mostly in my head and upper body were all related to the disc.....because I had bookmarked and downloaded tons of arguments that it sometimes could very well be related to a disc....but sadly even before I went back to the surgeon for a follow-up I knew in my heart being that I've gained my strength back in my hand and I know longer had the locolalized pain going down my arm that he wouldn't do the surgery.
How can it be that me....me a successful business owner, a "can do" person, who never let anything stop her from meeting goals etc., with more determination than most people could fathom...how? HOW CAN IT BE that just a year ago in the summer I could walk as much as I wanted without feeling the pains in the very odd places in my hips etc.. to where I was afraid I may not make it home because of the pain. I can't even play the guitar anymore (major flare up from myofascial syndrome in basically my entire uppr back/shoulder area). I used to be a machine at just about everything I did and now....now it's like MY LIFE HAS COME TO A HALT. And now I host a lot of anger because I get SO MAD at my primary doctor who is just a jerk as is and the idea of doctor hopping in this area is joke.
I think to myself that "no way.....it can't be Fibro it's got to be something else" and as crazy as this sounds I sometimes wonder if I'd rather find out it was MS because atleast may they have a more concret course of managing pain but then I read that often times those poor people end up with fibro as well.
In either case I guess this wasn't the most pleasant means of saying "hi". Heck who knows; with never being able to remember anything anymore (not sure if it's the gabapentin or 'fibro fog' as they say) but I might as well apologize now if I'd already been on here and said "hi" to introduce myelf already.
About me:
49 y/o femaile who just last year felt like she was still in her 20's who now feels as if I'm 80 and even though I am trying to be positive about this I am in constant self pity mode screaming on the inside to just about anyone that matters "If you only could understand how much this stuff s***s!!!!" And then I feel selfish I guess because I suppose it could be worse. Could it? Yes I suppose it could. But in all honesty sometimes I've wondered if it wouldn't be better being wheel chair bound with a sound mind minus pain, than being able to walk but limited to doing much anyway because of the pain you are constantly in.
I haven't been officially diagnosed yet and quite frankly I'm hoping like heck that I don't have Fibro but it seems as if I pretty much have every symptom but 2 (as well as the allodnia, although I did panic a bit when I had 2 mesquito bites and the next day they felt as if someone punched me in the arm there).
I am still shaking my head in disbelief after nearly 6 months of this.........and to think that it all started out as what I was certain was carpal tunnerl but emg came back neg, and then the PT's and myself thought it was TOS, and then the MRI confirmed that it was a cervical herniated disc; long story short the surgeon I went to (best surgeon in town) was ready to do surgery because I had all the classic symptoms of the dermotomal pattern......well, before I had decided to go ahead and have the surgery those classic nerve root symptoms have all but disappeared and then a host of other 'unrelated' symptoms started...it was and still does quite frankly make me so angry. After doing hours upon hours upon hours of fibro, and herniated disc as well as myofascial pain research I was to the point I was hoping to God that these mysterious random pains/aches throughout my body as well as the constant burning sensation I have mostly in my head and upper body were all related to the disc.....because I had bookmarked and downloaded tons of arguments that it sometimes could very well be related to a disc....but sadly even before I went back to the surgeon for a follow-up I knew in my heart being that I've gained my strength back in my hand and I know longer had the locolalized pain going down my arm that he wouldn't do the surgery.
How can it be that me....me a successful business owner, a "can do" person, who never let anything stop her from meeting goals etc., with more determination than most people could fathom...how? HOW CAN IT BE that just a year ago in the summer I could walk as much as I wanted without feeling the pains in the very odd places in my hips etc.. to where I was afraid I may not make it home because of the pain. I can't even play the guitar anymore (major flare up from myofascial syndrome in basically my entire uppr back/shoulder area). I used to be a machine at just about everything I did and now....now it's like MY LIFE HAS COME TO A HALT. And now I host a lot of anger because I get SO MAD at my primary doctor who is just a jerk as is and the idea of doctor hopping in this area is joke.
I think to myself that "no way.....it can't be Fibro it's got to be something else" and as crazy as this sounds I sometimes wonder if I'd rather find out it was MS because atleast may they have a more concret course of managing pain but then I read that often times those poor people end up with fibro as well.
In either case I guess this wasn't the most pleasant means of saying "hi". Heck who knows; with never being able to remember anything anymore (not sure if it's the gabapentin or 'fibro fog' as they say) but I might as well apologize now if I'd already been on here and said "hi" to introduce myelf already.
About me:
49 y/o femaile who just last year felt like she was still in her 20's who now feels as if I'm 80 and even though I am trying to be positive about this I am in constant self pity mode screaming on the inside to just about anyone that matters "If you only could understand how much this stuff s***s!!!!" And then I feel selfish I guess because I suppose it could be worse. Could it? Yes I suppose it could. But in all honesty sometimes I've wondered if it wouldn't be better being wheel chair bound with a sound mind minus pain, than being able to walk but limited to doing much anyway because of the pain you are constantly in.